ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2022
Understanding the financial and psychological impact of employment disruption among caregivers of pediatric HSCT recipients: a mixed methods analysis.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it, 19 citations in OpenAlex.
- Financial toxicity among families of children with cancer: a qualitative systematic review and meta-aggregation.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Pooled it
- From Mechanisms to Manifestations: A Scoping Review Exploring Cancer-Related Discrimination.Psycho-oncology · 2026Article
- Building HOPE: operationalizing hybrid decentralized oncology clinical trials with community providers beyond traditional healthcare system networks.The oncologist · 2026Article
- The Caregiver Paradigm in Hematopoietic Cell Transplant: Current and Future Directions.Transplantation and cellular therapy · 2025Review
- Assessing Quality of Life and Symptoms in Transplantation and CAR-T Recipients: Expert Panel Recommendations from the Survivorship Special Interest Group of ASTCT.Transplantation and cellular therapy · 2025Review
- Psychosocial Interventions to Relieve Traumatic Stress Symptoms in Family Caregivers of Children With Cancer: A Scoping Review.Psycho-oncology · 2025Article
- Non-monetary burdens of out-of-pocket costs incurred by patients and caregivers for medical care: a scoping review.BMJ open · 2025Article
- Exploring the financial burden of pediatric bone marrow transplantation: a cross-sectional Study from the caregiver's viewpoint.BMC health services research · 2025Article
- Obstacles and facilitators of parents' coping with hematopoietic stem cell transplantation of a child with cancer.PloS one · 2025Article
- Supportive care needs and associated factors among caregivers of patients with colorectal cancer: a cross-sectional study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- A dyadic analysis of financial toxicity and health-related quality of life among bone marrow transplant patients and their caregivers.Psycho-oncology · 2024Article
- Methods used to account for caregivers' sex and gender within studies examining the financial burden of caregivers of children and adolescents : Results from a scoping review.ClinicoEconomics and outcomes research : CEOR · 2024Article
- Financial burden and recommended multilevel solutions among caregivers of pediatric hematopoietic stem cell transplant recipients.Pediatric blood & cancer · 2023Article
- Access to Chimeric Antigen Receptor T Cell Clinical Trials in Underrepresented Populations: A Multicenter Cohort Study of Pediatric and Young Adult Acute Lymphobastic Leukemia Patients.Transplantation and cellular therapy · 2023Article
- Anxiety and Depression in Parents of Children Undergoing Hematopoietic Stem Cell Transplant (HSCT).Advances in experimental medicine and biology · 2023Article
- A Longitudinal Observational Mixed Methods Cohort Study of the Psychosocial and Financial Costs of Cancer Care for Pediatric Families in the Maritimes, Canada.Cancer control : journal of the Moffitt Cancer CenterObservational
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Authors and funding
9 authors at 4 institutions in 1 country.
Funding
Abstract
purposePediatric hematopoietic stem cell transplantation (HSCT) confers a substantial financial burden onto patients' families. In addition to high direct medical costs, HSCTs typically require at least one caregiver to take time away from work or other responsibilities, often leading to reduced household income. Using mixed methods, we sought to understand the impact of pediatric HSCT on caregiver employment and financial need.
methodsWe surveyed caregivers of living pediatric patients who underwent HSCT at one of two southeastern transplant centers between 2012 and 2018 (N = 95). We then interviewed a subset of caregivers (N = 18) to understand whether and how employment disruption contributed to financial distress.
resultsAmong caregivers surveyed, the majority of household wage earners changed their work schedules to attend medical appointments and missed workdays. This resulted in income loss for 87% of families, with 31% experiencing an income reduction of over 50%. Qualitative interviews pointed to four emergent themes: (1) employment disruption exacerbated existing financial challenges; (2) parental division of labor between caregiving and providing financially led to heightened psychological distress; (3) existing employment leave and protection resources were essential but not sufficient; and (4) the ability to work remotely and having a supportive employer facilitated employment maintenance throughout the HSCT process.
conclusionExpanded employment protections and access to accommodations are needed to limit the impact of HSCT on household income, health insurance, and financial hardship. Additionally, interventions are needed to ensure caregivers are equipped with the information necessary to navigate conversations with employers and prepare for the financial and psychological reality of employment disruption.
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