Evidence map›Paper›PMID 35130331›Full record

Observational studyPloS one2022

Beyond inclusion: Enacting team equity in precision medicine research.

Melanie Jeske, Emily Vasquez, Stephanie M Fullerton, Aliya Saperstein, Michael Bentz, Nicole Foti, Janet K Shim, Sandra Soo-Jin Lee

Open access · goldAbstract readMulticenter StudyObservational Study
In one paragraph

Observational study in PloS one, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
7.6field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 25 citations in OpenAlex.

  1. Review
  2. Article
  3. Research for all: building a diverse researcher community for the All of Us Research Program.Journal of the American Medical Informatics Association : JAMIA · 2025
    Article
  4. Article
  5. Review
  6. Review
  7. Article
  8. Article
  9. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 5 institutions in 1 country.

Melanie JeskeDepartment of Social and Behavioral Sciences, University of California, San Francisco, California, United States of America.ORCID 0000-0003-0743-5974
Emily VasquezDepartment of Sociology, University of Illinois, Chicago, Illinois, United States of America.
Stephanie M FullertonDepartment of Bioethics & Humanities, School of Medicine, University of Washington, Seattle, Washington, United States of America.
Aliya SapersteinDepartment of Sociology, Stanford University, Stanford, California, United States of America.
Michael BentzDivision of Ethics, Department of Medical Humanities and Ethics, Columbia University, New York, NY, United States of America.
Nicole FotiDepartment of Social and Behavioral Sciences, University of California, San Francisco, California, United States of America.
Janet K ShimDepartment of Social and Behavioral Sciences, University of California, San Francisco, California, United States of America.
Sandra Soo-Jin LeeDivision of Ethics, Department of Medical Humanities and Ethics, Columbia University, New York, NY, United States of America.
University of California, San Francisco · USCal Humanities · USStanford University · USUniversity of Illinois Chicago · USUniversity of Washington · US

Funding

Understanding the Expectations and Needs of Diverse Communities for Navigating Research ResultsR01HG010330 · NHGRI · STANFORD UNIVERSITY · PI LEE, SANDRA SOO-JIN, SHIM, JANET K · 2018 to 2021
$2.9M
NHGRI NIH HHS R01 HG010330
6 · The paper itself

Abstract

purposeTo identify meanings of and challenges to enacting equitable diversification of genomics research, and specifically precision medicine research (PMR), teams.

methodsWe conducted in-depth interviews with 102 individuals involved in three U.S.-based precision medicine research consortia and conducted over 400 observation hours of their working group meetings, consortium-wide meetings, and conference presentations. We also reviewed published reports on genomic workforce diversity (WFD), particularly those relevant to the PMR community.

resultsOur study finds that many PMR teams encounter challenges as they strive to achieve equitable diversification on scientific teams. Interviewees articulated that underrepresented team members were often hired to increase the study's capacity to recruit diverse research participants, but are limited to on-the-ground staff positions with little influence over study design. We find existing hierarchies and power structures in the academic research ecosystem compound challenges for equitable diversification.

conclusionOur results suggest that meaningful diversification of PMR teams will only be possible when team equity is prioritized as a core value in academic research communities.

Indexed as

Cultural DiversityAdolescentAdultAgedBiomedical ResearchFemaleGenomicsHealth WorkforceHumansLaboratory PersonnelMaleMiddle AgedPatient Care TeamPrecision MedicineUnited StatesYoung Adult

Identifiers

PMID35130331
PMCPMC8820610
OpenAlexW4210527755

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.