Evidence map›Paper›PMID 35129846›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2022

Parents' perspectives on user participation and shared decision-making in adolescents' inpatient mental healthcare.

Stig Bjønness, Trond Grønnestad, Jan O Johannessen, Marianne Storm

Open access · goldAbstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed, 2 pooled it
7.2field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 2 syntheses or guidelines pooled it, 29 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
  3. Impact of YouTube User-Generated Content on News Dissemination and Youth Information Reception.Health expectations : an international journal of public participation in health care and health policy · 2025
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  11. Parents' perspectives on user participation and shared decision-making in adolescents' inpatient mental healthcare.Health expectations : an international journal of public participation in health care and health policy · 2022
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 2 institutions in 1 country.

Stig BjønnessDepartment of Public Health, Centre for Resilience in Healthcare (SHARE), Faculty of Health Science, University of Stavanger, Stavanger, Norway.ORCID 0000-0001-7220-1010
Trond GrønnestadDepartment of Public Health, Faculty of Health Science, University of Stavanger, Stavanger, Norway.ORCID 0000-0002-6441-9850
Jan O JohannessenDepartment of Public Health, Faculty of Health Science, University of Stavanger, Stavanger, Norway.ORCID 0000-0001-7740-8168
Marianne StormDepartment of Public Health, Faculty of Health Science, University of Stavanger, Stavanger, Norway.ORCID 0000-0002-1139-5947
Stavanger Health Research (Norway) · NOStavanger University Hospital · NO

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundParents are a resource that can be of considerable importance in supporting their adolescents' recovery and shared decision-making processes. However, involving both adolescents and their parents in treatment creates challenges. Understanding the roles of all decision stakeholders is vital to the implementation of shared decision-making and delivery of high-quality healthcare services.

objectiveThe aim of this study is to explore parents' experiences with adolescents' participation in mental health treatment and how parents perceive being involved in decision-making processes.

designThis was a qualitative study with a phenomenological, inductive design. Content analysis of data from qualitative interviews was performed. SETTING AND

participantsThis study took place in a Norwegian public healthcare setting. Twelve parents of adolescents who received treatment for severe mental illness participated.

resultsFour themes were identified: (1) self-determined treatment, but within limits; (2) the essential roles of parents; (3) the need for information and support; and (4) the fight for individualized treatment and service coordination.

conclusionUser participation is vital in adolescent mental healthcare and parents play essential roles regarding the shared decision-making process. However, user participation and shared decision-making pose several dilemmas. Parental involvement in treatment decisions may be necessary when adolescents are mentally ill, but could simultaneously hinder those adolescents' empowerment and recovery. Cooperation among parents, adolescents and healthcare professionals can improve treatment engagement and adherence, but may be challenged by divergent interests. Health services should provide family-oriented services to utilize the potential of parents as a resource and minimize conflicting interests. PATIENT OR PUBLIC CONTRIBUTION: Two adolescent user representatives participated in designing the study.

Indexed as

Mental Health ServicesPatient ParticipationAdolescentDecision MakingHumansInpatientsParentsadolescentinpatientmental healthcareparentsqualitative studyshared decision-makinguser participation

Identifiers

PMID35129846
PMCPMC9122388
OpenAlexW4210901439

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.