ArticleJournal of the American Geriatrics Society2022
Trends in advance care planning and end-of-life care among persons living with dementia requiring surrogate decision-making.
Article in Journal of the American Geriatrics Society, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed, 21 citations in OpenAlex.
- Healthcare professionals' experiences of advance care planning conversations with frail older adults admitted to acute geriatric hospital units: a nested qualitative study.BMC health services research · 2026Observational
- Palliative psychiatry through the eyes of psychiatric nurses in a country where palliative psychiatry has not yet emerged: A qualitative study.Palliative & supportive care · 2026Article
- Communication Surrounding Treatment Preferences for Older Adults With Dementia During Emergency Medical Services Response.Journal of the American Geriatrics Society · 2026Article
- Article
- Promoting serious illness conversations in primary care through telehealth among persons living with cognitive impairment.Journal of the American Geriatrics Society · 2024Article
- Drugs, delirium, and ethics at the end of life.Journal of the American Geriatrics Society · 2024Article
- Applying human-centered design to adapt the Jumpstart Guide for goals-of-care discussions in persons living with dementia.Journal of the American Geriatrics Society · 2024Article
- Factors Associated with Costly Hospital Care among Patients with Dementia and Acute Respiratory Failure.Annals of the American Thoracic Society · 2024Article
- Study protocol for the development and validation of a clinical prediction tool to estimate the risk of 1-year mortality among hospitalized patients with dementia.Diagnostic and prognostic research · 2024Article
- Perspectives on advance care planning needs of persons with advanced dementia from their surrogates and clinicians.PEC innovation · 2023Article
- Decision Making for Patients With Severe Dementia Versus Normal Cognition Near the End of Life.Innovation in aging · 2023Article
- Life-Sustaining Treatments Among Medicare Beneficiaries with and without Dementia at the End of Life.Journal of Alzheimer's disease : JAD · 2023Article
- Perceived Barriers and Facilitators of Implementing a Multicomponent Intervention to Improve Communication With Older Adults With and Without Dementia (SHARING Choices) in Primary Care: A Qualitative Study.Journal of primary care & community healthArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 2 institutions in 1 country.
Funding
Abstract
backgroundPrevious studies have demonstrated positive impacts of advance care planning (ACP) on end-of-life (EOL) care. We sought to examine trends in ACP and EOL care intensity among persons living with dementia who required surrogate decision-making in their final days of life.
methodsWe analyzed the participants of the Health and Retirement Study (HRS), a nationally representative longitudinal panel study of U.S. residents, with dementia 70 years and older who required surrogate decision-making in the final days of life and died between 2000 and 2014. Based on surrogate reports after the death of a participant, our study measured the completion of three specific types of patient-engaged ACP (written EOL care instructions, assignment of a durable power of attorney for healthcare, patient engagement in EOL care discussions) and four measures of EOL care in the final days of life (death in hospital, receipt of life-prolonging treatments, limiting or withholding certain treatments, and receipt of comfort-oriented care). All analyses accounted for the complex survey design of HRS.
resultsAmong 870 adults (weighted N = 2,812,380) with dementia who died in 2000-2014 and required surrogate decision-making at EOL, only 34.8% of patients participated in all three aspects of ACP, and there was not a significant increase in ACP completion between 2000 and 2014. The receipt of life-prolonging treatments in the final days of life has increased over time (adjusted change per year, 1.4 percentage points [pp]; 95% CI, 0.5 to 2.2 pp; P-for-trend = 0.002), while the percentage of death in hospital, limiting or withholding certain treatments, or comfort-oriented care did not change.
conclusionsOur findings suggest that the rates of ACP completion have not increased over time despite its potential benefits and life-prolonging treatments are still common among PLWD who require surrogate decision-making, a population who might benefit greatly from early ACP.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.