ArticleJournal of cancer survivorship : research and practice2023
Needs and preferences of breast cancer survivors regarding outcome-based shared decision-making about personalised post-treatment surveillance.
Article in Journal of cancer survivorship : research and practice, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 5 of them syntheses that pooled it.
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Who cites it
21 citing papers in PubMed, 5 syntheses or guidelines pooled it, 34 citations in OpenAlex.
- The Effectiveness of Interventions Based on Symptom Clusters for Symptom Burden and Quality of Life Among Cancer Patients: A Meta-Analysis of Randomized Controlled Trials.Research in nursing & health · 2026Pooled it
- Effectiveness of dyadic interventions on family function, caregiver burden and symptom distress for cancer patients and family caregivers: a meta-analysis of randomized controlled trials.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Pooled it
- The effectiveness of personalised surveillance and aftercare in breast cancer follow-up: a systematic review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Pooled it
- Decision aids for cancer survivors' engagement with survivorship care services after primary treatment: a systematic review.Journal of cancer survivorship : research and practice · 2024Pooled it
- Breast cancer survivors-supportive care needs: systematic review.BMJ supportive & palliative care · 2023Pooled it
- Reassessing the Role of Regular Physical Examination in Post-treatment Breast Cancer Surveillance.Annals of surgical oncology · 2026Article
- Beyond breast cancer: mapping unmet needs and advancing an evidence-based framework of survivorship care.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Review
- The increasing role of breast-conserving treatment in patients with BRCA-related breast cancer: an appraisal of recent literature.Frontiers in oncology · 2026Review
- The Impact of Self-Directed Aftercare Following Breast Cancer Surgery: A Scoping Review.Psycho-oncology · 2026Article
- Consensus Guidelines for the Follow-Up Care of Long-Term Cancer Survivors and Their Families for Primary Care Nurses in Spain: A Modified Delphi Study.Nursing & health sciences · 2025Article
- Choroidal melanoma patient views on the importance of treatment characteristics and outcomes, and physicians' information provision in the Netherlands.Acta ophthalmologica · 2025Article
- "Who's gonna take care of my babies?" the impact of children on treatment decisions for women with metastatic breast cancer: a qualitative analysis.BMC cancer · 2025Article
- Patient-perceived barriers and facilitators for risk-stratified follow-up care in lung cancer: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Surveillance imaging: minimal evidence and forgotten harms.BMJ oncology · 2025Article
- Living in the twilight zone: a qualitative study on the experiences of patients with advanced cancer obtaining long-term response to immunotherapy or targeted therapy.Journal of cancer survivorship : research and practice · 2024Article
- The COVID-19 pandemic and its effects on follow-up of patients with early breast cancer: A patient survey.Breast cancer research and treatment · 2024Article
- Personalized surveillance and aftercare for non-metastasized breast cancer: the NABOR study protocol of a multiple interrupted time series design.BMC cancer · 2023Article
- Article
- Relations between recurrence risk perceptions and fear of cancer recurrence in breast cancer survivors.Breast cancer research and treatment · 2022Article
- Article
Corrections and comments
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Authors and funding
6 authors at 5 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeIn this study, we explored how patients experience current information provision and decision-making about post-treatment surveillance after breast cancer. Furthermore, we assessed patients' perspectives regarding less intensive surveillance in case of a low risk of recurrence.
methodsWe conducted semi-structured interviews with 22 women in the post-treatment surveillance trajectory in seven Dutch teaching hospitals.
resultsAlthough the majority of participants indicated a desire for shared decision-making (SDM) about post-treatment surveillance, participants experienced no SDM. Information provision was often suboptimal and unstructured. Participants were open for using risk information in decision-making, but hesitant towards less intensive surveillance. Perceived advantages of less intensive surveillance were: less distressing moments, leaving the patient role behind, and lower burden. Disadvantages were: fewer moments for reassurance, fear of missing recurrences, and a higher threshold for aftercare for side effects.
conclusionsSDM about post-treatment surveillance is desirable. Although women are hesitant about less intensive surveillance, they are open to the use of personalised risk assessment for recurrences in decision-making about surveillance. IMPLICATIONS FOR CANCER SURVIVORS: To facilitate SDM about post-treatment surveillance, the timing and content of information provision should be improved. Risk information should be provided in an accessible and understandable way. Moreover, fear of cancer recurrence and other personal considerations should be addressed in the process of SDM.
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