ArticleBMJ open2022
Changes to postdiagnostic dementia support in England and Wales during the COVID-19 pandemic: a qualitative study.
Article in BMJ open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed.
- The Importance of the Social Environment for People Living With Dementia and Their Carers: Qualitative Evidence From DETERMIND and PriDem on the Impact of COVID-19 Service Changes and Restrictions in England and Wales.Dementia (London, England) · 2026Article
- 'It opens up a whole new world for everybody': how carers of people with dementia view the online empowered conversations communication course.Aging & mental health · 2025Article
- "Necessity is the mother of invention": Experiences of accessing and delivering dementia-related support services by information communication technology during the pandemic in the UK.Dementia (London, England) · 2025Article
- Implementing and sustaining dementia care coordinators across integrated care systems: a realist evaluation.BMC medicine · 2024Article
- Article
- Determinants of hospital readmissions in older people with dementia: a narrative review.BMC geriatrics · 2024Review
- Standardised data collection from people with dementia over the telephone: A qualitative study of the experience of DETERMIND programme researchers in a pandemic.Dementia (London, England) · 2023Article
- "I felt like I had been put on the shelf and forgotten about" - lasting lessons about the impact of COVID-19 on people affected by rarer dementias.BMC geriatrics · 2023Article
- Article
- Protocol of a feasibility randomised controlled trial of Empowered Conversations: training family carers to enhance their relationships and communication with people living with dementia.NIHR open research · 2023Article
- The memory clinic and psychosocial intervention: Translating past promise into current practices.Frontiers in rehabilitation sciences · 2023Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo explore the impact of COVID-19 on postdiagnostic dementia care and support provision in England and Wales.
designQualitative research using semistructured interviews, via video or telephone conferencing.
settingServices providing postdiagnostic support across health, social care and the third sector.
participants21 professionals previously recruited to an ongoing research programme on postdiagnostic dementia care (or colleagues, if unavailable).
resultsKey themes identified from the data were: challenges caused by COVID-19; responses to those challenges, including a widespread shift to remote working; and effects of COVID-19 on future postdiagnostic support. Challenges included changing and sometimes conflicting guidelines; a lack of access to support; identifying and responding to emerging needs; emotional and physical impact of COVID-19; and balancing COVID-19 risk with other risks such as deterioration. Some dementia services closed, while others adapted and continued to provide support thus potentially widening existing inequalities. There were also some unintended positive outcomes, including improved cross-sector and multidisciplinary working between professionals.
conclusionDelivering postdiagnostic dementia support during COVID-19 required essential adaptations. While some changes were detrimental to service users, others were identified as potentially beneficial and highly likely to become the new 'norm', for example, use of blended approaches, combining virtual and face-to-face work, thus allowing more flexible, integrated care. Our data have implications for policy and practice to improve the response to the lingering effects of COVID-19 as well as creating service provision that is more resilient to future pandemics or other periods of disruption.
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