ArticleDevelopmental medicine and child neurology2022
Diagnostic preferences include discussion of etiology for adults with cerebral palsy and their caregivers.
Article in Developmental medicine and child neurology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
7 citing papers in PubMed, 9 citations in OpenAlex.
- A Phenotypic Paradigm for Cerebral Palsy Genetics.medRxiv : the preprint server for health sciences · 2026Article
- Characteristics of Cerebral Palsy in the Midwestern US.Annals of clinical and translational neurology · 2026Article
- Evaluation of Problematic Media Use in Children with Cerebral Palsy Aged 4-11 Years: A Case-Control Study.Children (Basel, Switzerland) · 2025Article
- Uncertainties Regarding Cerebral Palsy Diagnosis: Opportunities to Clarify the Consensus Definition.Neurology. Clinical practice · 2024Article
- Motor phenotypes associated with genetic neurodevelopmental disorders.Annals of clinical and translational neurology · 2024Article
- Causation in cerebral palsy: Parental beliefs and associated emotions.Developmental medicine and child neurology · 2024Article
- What does an aetiological diagnosis actually mean?Developmental medicine and child neurology · 2022Article
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Authors and funding
8 authors at 5 institutions in 1 country.
Funding
Abstract
aimTo determine the views of individuals with cerebral palsy (CP) and their caregivers (CP community members) about carrying a CP diagnosis, an etiological diagnosis, or both diagnoses together.
methodWe surveyed CP community members across two registries querying their views on carrying a CP diagnosis, one type of etiological diagnosis (specifically, a genetic diagnosis), or both. Open-ended responses were analyzed using a conventional content analysis approach.
resultsOf 197 respondents (108 adults with CP and 89 caregivers), most (75%) valued knowing the cause of their CP. Of those with a diagnostic preference, most preferred carrying both CP and etiological diagnoses together (68%). When compared with carrying an etiological diagnosis alone, significantly more respondents felt a CP diagnosis helped anticipate symptom evolution (84% vs 54%), explain symptoms to others (86% vs 48%), access services (86% vs 48%), and join support communities (78% vs 50%) (p < 0.01, χ
interpretationMost CP community members surveyed want to know the cause of their CP and would prefer carrying both CP and etiological diagnoses together. Clinical practice should evolve to meet these community needs.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.