Evidence map›Paper›PMID 35089602›Full record

ArticleSociology of health & illness2022

Attending to child agency in paediatric palliative care consultations: Adults' use of tag questions directed to the child.

Katie Ekberg, Stuart Ekberg, Lara Weinglass, Anthony Herbert, Johanna Rendle-Short, Myra Bluebond-Langner, Patsy Yates, Natalie Bradford, Susan Danby

Abstract read
In one paragraph

Article in Sociology of health & illness, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Katie EkbergSchool of Early Childhood and Inclusive Education, Queensland University of Technology, Brisbane City, Queensland, Australia.ORCID 0000-0002-8237-1459
Stuart EkbergSchool of Psychology & Counselling, Queensland University of Technology, Brisbane City, Queensland, Australia.ORCID 0000-0001-8837-7440
Lara WeinglassSchool of Early Childhood and Inclusive Education, Queensland University of Technology, Brisbane City, Queensland, Australia.ORCID 0000-0002-8618-3527
Anthony HerbertChildren's Health Queensland Hospital and Health Service, Brisbane City, Queensland, Australia.ORCID 0000-0002-9777-1105
Johanna Rendle-ShortCollege of Arts and Social Sciences, Australian National University, Canberra, Australian Capital Territory, Australia.ORCID 0000-0002-4916-1118
Myra Bluebond-LangnerLouis Dundas Centre for Children's Palliative Care, University College London Great Ormond Street Institute of Child Health, London, UK.ORCID 0000-0001-9281-5431
Patsy YatesCentre for Healthcare Transformation, Queensland University of Technology, Brisbane City, Queensland, Australia.ORCID 0000-0001-8946-8504
Natalie BradfordSchool of Nursing, Queensland University of Technology, Brisbane City, Queensland, Australia.ORCID 0000-0003-1602-4544
Susan DanbySchool of Early Childhood and Inclusive Education, Queensland University of Technology, Brisbane City, Queensland, Australia.ORCID 0000-0002-1944-7043

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Children's agency in their own lives is increasingly recognised as important, including within paediatric health care. The issue of acknowledging child agency is complex in the context of paediatric palliative care, where children have serious and complex conditions that often impact their ability to verbally communicate with others. This study explores how clinicians and parents/guardians direct talk towards a child patient when they are present in a consultation. Conversation analysis methods were used to examine 74 video-recorded paediatric palliative care consultations. Detailed turn-by-turn examination of the recorded consultations identified the recurrent use of a practice described by linguists as a 'tag question', which follows some statement (e.g. 'he loves that, don't ya'). Both clinicians and parents/guardians often directed these tag questions towards the child patient. Analysis demonstrated how these tag questions: (1) validated the child's epistemic authority over what was being said and (2) made a child's response a possible, but not necessary, next action. The findings are discussed in relation to the sociology of child agency and how this agency is acknowledged and displayed within and through social interaction. This research provides direct evidence of children's competence as informants about their own symptoms.

Indexed as

FamilyPalliative CareAdultChildHumansMaleParentsProfessional-Family RelationsReferral and Consultationchild agencyconversation analysispaediatric palliative caretag questions

Identifiers

PMID35089602
PMCPMC9304193

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.