ArticleJournal of medical Internet research2022
Social Media Platforms Listening Study on Atopic Dermatitis: Quantitative and Qualitative Findings.
Article in Journal of medical Internet research, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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Who cites it
15 citing papers in PubMed, 24 citations in OpenAlex.
- How Social Media Analysis Offers an Opportunity to Understand the Reality of People Living With Multiple Sclerosis: Descriptive French Study.JMIR infodemiology · 2026Article
- Using Social Media Listening to Understand the Pressure Injury Experience: A Qualitative Descriptive Study.JMIR nursing · 2026Article
- Extracting Quality of Life Information of Patients Diagnosed With Breast Cancer From Health Care Online Forum Posts: Data Feasibility Study.JMIR cancer · 2026Article
- Social Media Listening in Congenital Ichthyosis: Quantitative and Qualitative Findings.JMIR formative research · 2026Article
- Exploring online discussions for those living with cutaneous T cell lymphoma: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Natural Language Processing and Machine Learning Techniques for Analyzing Conversations About Nutritional Yeasts in the United States and France: Retrospective Social Media Listening Study.JMIR infodemiology · 2025Article
- Patients' preferences on atopic dermatitis skincare and social media use: a qualitative study.BMC public health · 2025Article
- Understanding stakeholders' experience with sickle cell disease by social media listening across Europe.Frontiers in genetics · 2025Article
- Experiences of Women With Medical Abortion Care Reflected in Social Media (VEILLE Study): Noninterventional Retrospective Exploratory Infodemiology Study.JMIR infodemiology · 2024Article
- Artificial intelligence-enabled social media listening to inform early patient-focused drug development: perspectives on approaches and strategies.Frontiers in digital health · 2024Article
- Patient Perception and Self-Reported Outcomes with Presbyopia-Correcting Intraocular Lenses (PCIOLs): A Social Media Listening Study.Ophthalmology and therapy · 2024Article
- [Information needs of patients with atopic eczema-a qualitative study].Dermatologie (Heidelberg, Germany) · 2023Article
- Use of Social Media for Patient Education in Dermatology: Narrative Review.JMIR dermatology · 2023Review
- Patients' and caregivers' perceptions of bariatric surgery: A France and United States comparative infodemiology study using social media data mining.Frontiers in digital health · 2023Article
- Advances in the study and application of digital technology in the clinical practice of atopic dermatitis.Digital healthReview
Corrections and comments
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Authors and funding
11 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAtopic dermatitis (AD) is a chronic, pruritic, inflammatory disease that occurs most frequently in children but also affects many adults. Social media have become key tools for finding and disseminating medical information.
objectiveThe aims of this study were to identify the main themes of discussion, the difficulties encountered by patients with respect to AD, the impact of the pathology on quality of life (QoL; physical, psychological, social, or financial), and to study the perception of patients regarding their treatment.
methodsA retrospective study was carried out by collecting social media posts in French language written by internet users mentioning their experience with AD, their QoL, and their treatments. Messages related to AD discomfort posted between July 1, 2010, and October 23, 2020, were extracted from French-speaking publicly available online forums. Automatic and manual extractions were implemented to create a general corpus and 2 subcorpuses depending on the level of control of the disease.
resultsA total of 33,115 messages associated with AD were included in the analysis corpus after extraction and cleaning. These messages were posted by 15,857 separate web users, most of them being women younger than 40 years. Tips to manage AD and everyday hygiene/treatments were among the most discussed topics for controlled AD subcorpus, while baby-related topics and therapeutic failure were among the most discussed topics for insufficiently controlled AD subcorpus. QoL was discussed in both subcorpuses with a higher proportion in the controlled AD subcorpus. Treatments and their perception were also discussed by web users.
conclusionsMore than just emotional or peer support, patients with AD turn to online forums to discuss their health. Our findings show the need for an intersection between social media and health care and the importance of developing new approaches such as the Atopic Dermatitis Control Tool, which is a patient-related disease severity assessment tool focused on patients with AD.
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