ArticleDementia (London, England)2022
Dementia-friendly communities: The involvement of people living with dementia.
Article in Dementia (London, England), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
9 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Influential factors of spousal relationship quality in couples living with dementia - A narrative synthesis systematic review.Dementia (London, England) · 2023Pooled it
- Food insecurity in later life: a food security framework to support preventative action.The Proceedings of the Nutrition Society · 2025Review
- Improving care for people with dementia through co-creation of action plans in the Western Pacific region.BMJ (Clinical research ed.) · 2025Article
- A University's Role in Developing a Regional Network of Dementia Friendly Communities.International journal of environmental research and public health · 2025Article
- 'Practice what you preach'. Perspectives on the involvement of people with dementia and carers in community-based dementia friendly initiatives, a qualitative study.Frontiers in psychiatry · 2024Article
- Variation in Implementing Dementia-Friendly Community Initiatives: Advancing Theory for Social Change.Geriatrics (Basel, Switzerland) · 2023Article
- Collaboration for Developing and Sustaining Community Dementia-Friendly Initiatives: A Realist Evaluation.International journal of environmental research and public health · 2023Article
- [Artificial intelligence and ethics in healthcare-balancing act or symbiosis?]Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz · 2023Review
- Organizational Characteristics of Senior Centers and Engagement in Dementia-Friendly Communities.Innovation in aging · 2023Article
Corrections and comments
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Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDementia Friendly Communities (DFCs) offer an approach to community engagement to improve the lives of people living with dementia and their family supporters. The involvement of those living with dementia is key to creating successful DFCs. This paper examines how people affected by dementia were involved in developing and designing DFCs in England, and the impact of their involvement.
methodsThis study used a mixed method case study design in six DFCs in England. Data collection involved documentary analysis, a survey, and interviews and focus groups with service providers and people living with dementia and their supporters.
findingsAll six DFCs aspired to involve people living with dementia and their family supporters, but often relied on a small number of people living with dementia. The range of involvement activities in DFCs included Steering Group meetings, wider public consultations, and enabling feedback through data collection methods such as surveys and 'ad hoc' conversations. Organisations within the DFCs with experience of public consultation offered structured opportunities for involvement. There was no evidence of people living with dementia initiating or co-leading the organisation, its direction and/or the activities of the DFCs.
conclusionThe involvement of people living with dementia in DFCs went beyond rhetoric, with some evidence of context sensitive and meaningful participation. Approaches towards involvement should focus on involvement in strategic planning, and on harnessing expertise in delivering different involvement activities to optimise participation of a greater breadth of people living with dementia. Engagement with local organisations who work with, and for, people living with dementia, and dedicating the resources needed for involvement work, are crucial for creating DFCs. The success of DFCs are determined by how the needs of people living with dementia are identified, discussed and reviewed by those within the community who are most affected.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.