Evidence map›Paper›PMID 35085276›Full record

SynthesisPloS one2022

Consumer engagement in health care policy, research and services: A systematic review and meta-analysis of methods and effects.

Louise K Wiles, Debra Kay, Julie A Luker, Anthea Worley, Jane Austin, Allan Ball, Alan Bevan, Michael Cousins, Sarah Dalton, Ellie Hodges and 9 more

Open access · goldAbstract readMeta-AnalysisSystematic Review
In one paragraph

Synthesis in PloS one, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 71 papers, 5 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
71citing papers in PubMed, 5 pooled it
33.4field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

71 citing papers in PubMed, 5 syntheses or guidelines pooled it, 130 citations in OpenAlex.

  1. Pooled it
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  6. Trial
  7. Article
  8. Article
  9. Consumer and Stakeholder Perspectives About the Lived Experience Advisor Programme: A Qualitative Descriptive Study.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  10. Better Healthcare Together: Co-Designing a Framework for Health Service Co-Design.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  11. Laying the Foundations for Co-Design: A Micro-Community Engagement Approach to Patient and Public Involvement in Rural Health Research.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  12. Article
  13. Using an evidence-informed co-design approach to develop a mechanism to measure experiences of the open disclosure process: an Irish case study.International journal for quality in health care : journal of the International Society for Quality in Health Care · 2026
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11 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

19 authors at 7 institutions in 1 country.

Louise K WilesAllied Health and Human Performance, University of South Australia, Adelaide, South Australia, Australia.ORCID 0000-0002-6557-6196
Debra KayHealth Consumer Advocate/Representative, Adelaide, South Australia, Australia.
Julie A LukerAllied Health and Human Performance, University of South Australia, Adelaide, South Australia, Australia.
Anthea WorleyAllied Health and Human Performance, University of South Australia, Adelaide, South Australia, Australia.
Jane AustinHealth Performance Council, Adelaide, South Australia, Australia.
Allan BallNational Disability Insurance Agency, Adelaide, South Australia, Australia.
Alan BevanHealth Consumer Advocate/Representative, Adelaide, South Australia, Australia.
Michael CousinsCarers SA, Seaton, South Australia, Australia.
Sarah DaltonThe Children's Hospital at Westmead, Westmead, New South Wales, Australia.
Ellie HodgesLived Experience Representative, Adelaide, South Australia, Australia.
Lidia HorvatSafer Care Victoria, Melbourne, Victoria, Australia.
Ellen KerrinsSAHMRI Community Advisory Group, Adelaide, South Australia, Australia.
Julie MarkerHealth Consumer Advocate/Representative, Adelaide, South Australia, Australia.
Michele McKinnonSA Health, Adelaide, South Australia, Australia.
Penelope McMillanHealth Consumer Advocate/Representative, Adelaide, South Australia, Australia.
Maria Alejandra Pinero de PlazaHealth Consumer Advocate/Representative, Adelaide, South Australia, Australia.ORCID 0000-0001-5421-9604
Judy SmithRoyal District Nursing Service, Keswick, South Australia, Australia.
David YeungSouth Australian Health and Medical Research Institute (SAHMRI), Adelaide, South Australia, Australia.
Susan L HillierAllied Health and Human Performance, University of South Australia, Adelaide, South Australia, Australia.
SA Health · AUUniversity of South Australia · AUChildren's Hospital at Westmead · AUFlinders University · AUNational Disability Insurance Agency · AUSouth Australian Health and Medical Research Institute · AUSouth Australia Pathology · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

To assess the effects of consumer engagement in health care policy, research and services. We updated a review published in 2006 and 2009 and revised the previous search strategies for key databases (The Cochrane Central Register of Controlled Trials; MEDLINE; EMBASE; PsycINFO; CINAHL; Web of Science) up to February 2020. Selection criteria included randomised controlled trials assessing consumer engagement in developing health care policy, research, or health services. The International Association for Public Participation, Spectrum of Public Participation was used to identify, describe, compare and analyse consumer engagement. Outcome measures were effects on people; effects on the policy/research/health care services; or process outcomes. We included 23 randomised controlled trials with a moderate or high risk of bias, involving 136,265 participants. Most consumer engagement strategies adopted a consultative approach during the development phase of interventions, targeted to health services. Based on four large cluster-randomised controlled trials, there is evidence that consumer engagement in the development and delivery of health services to enhance the care of pregnant women results in a reduction in neonatal, but not maternal, mortality. From other trials, there is evidence that involving consumers in developing patient information material results in material that is more relevant, readable and understandable for patients, and can improve knowledge. Mixed effects are reported of consumer-engagement on the development and/or implementation of health professional training. There is some evidence that using consumer interviewers instead of staff in satisfaction surveys can have a small influence on the results. There is some evidence that consumers may have a role in identifying a broader range of health care priorities that are complementary to those from professionals. There is some evidence that consumer engagement in monitoring and evaluating health services may impact perceptions of patient safety or quality of life. There is growing evidence from randomised controlled trials of the effects of consumer engagement on the relevance and positive outcomes of health policy, research and services. Health care consumers, providers, researchers and funders should continue to employ evidence-informed consumer engagement in their jurisdictions, with embedded evaluation. Systematic review registration: PROSPERO CRD42018102595.

Indexed as

Community ParticipationHealth PolicyHealth ServicesPatient SafetyQuality of LifeFemaleHealth PersonnelHumansPregnancy

Identifiers

PMID35085276
PMCPMC8794088
OpenAlexW4210286331

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.