ArticleJournal of general internal medicine2022
Older Patients with Advanced Chronic Kidney Disease and Their Perspectives on Prognostic Information: a Qualitative Study.
Article in Journal of general internal medicine, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.
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Who cites it
14 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Patient engagement during the transition from nondialysis-dependent chronic kidney disease to dialysis: A meta-ethnography.Health expectations : an international journal of public participation in health care and health policy · 2023Pooled it
- Navigating prognostic uncertainty with H.O.P.E.: Caring for elderly patients with chronic kidney disease.Patient education and counseling · 2026Article
- Article
- Risk-based referral model to nephrologist specialist care in Stockholm.Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association · 2025Observational
- Kidney-therapy decision-making among older adults and caregivers: treatment beliefs, prognostic information, and health priorities.BMC nephrology · 2025Article
- Misaligned perspectives and experiences: a qualitative study of older patients with suboptimal Dialysis initiation and their clinicians.BMC nephrology · 2025Article
- How do older patients with advanced kidney disease, and their family members, understand kidney function and failure? A qualitative study.BMC nephrology · 2025Article
- Integrating Clinical Reasoning Into a Patient Decision Aid for People Making Conservative Kidney Management and Dialysis Decisions: A User-Centered Intervention Development Design.Kidney medicine · 2025Article
- Designing qualitative research with value in the clinical and epidemiological context: what, why and how.Clinical kidney journal · 2025Article
- Nephrology providers' perspective and use of mortality prognostic tools in dialysis patients.BMC nephrology · 2024Article
- Dealing with an uncertain future: a survey study on what patients with chronic kidney disease actually want to know.Clinical kidney journal · 2024Article
- Kidney Transplant Clinicians' Perceptions of Palliative Care for Patients With Failing Allografts in the US: A Mixed Methods Study.American journal of kidney diseases : the official journal of the National Kidney Foundation · 2024Article
- Predicting outcomes in chronic kidney disease: needs and preferences of patients and nephrologists.BMC nephrology · 2023Article
- Patient Perspectives on Integrating Risk Prediction Into Kidney Care: Opinion Piece.Canadian journal of kidney health and disease · 2022Article
Corrections and comments
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Authors and funding
16 authors.
Funding
Abstract
backgroundPrognostic information is key to shared decision-making, particularly in life-limiting illness like advanced chronic kidney disease (CKD).
objectiveTo understand the prognostic information preferences expressed by older patients with CKD. DESIGN AND
participantsQualitative study of 28 consecutively enrolled patients over 65 years of age with non-dialysis dependent CKD stages 3b-5, receiving care in a multi-disciplinary CKD clinic. APPROACH: Semi-structured telephone or in-person interviews to explore patients' preference for and perceived value of individualized prognostic information. Interviews were analyzed using inductive content analysis. KEY
resultsWe completed interviews with 28 patients (77.7 ± SD 6.8 years, 69% men). Patients varied in their preference for prognostic information and more were interested in their risk of progression to end-stage kidney disease (ESKD) than in life expectancy. Many conflated ESKD risk with risk of death, perceiving a binary choice between dialysis and quick decline and death. Patients expressed that prognostic information would allow them to plan, take care of important business, and think about their treatment options. Patients were accepting of prognostic uncertainty and imagined leveraging it to nurture hope or motivate them to better manage risk factors. They endorsed the desire to receive prognosis of life expectancy even though it may be hard to accept or difficult to talk about but worried it could create helplessness for other patients in their situation.
conclusionMost, but not all, patients were interested in prognostic information and could see its value in motivating behavior change and allowing planning. Some patients expressed concern that information on life expectancy might cause depression and hopelessness. Therefore, prognostic information is most appropriate as part of a clinical conversation that fosters shared decision-making and helps patients consider treatment risks, benefits, and burdens in context of their lives.
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