Evidence map›Paper›PMID 35081954›Full record

ArticleBMC medical ethics2022

Who's afraid of genetic tests?: An assessment of Singapore's public attitudes and changes in attitudes after taking a genetic test.

Ross Cheung, Shreshtha Jolly, Manoj Vimal, Hie Lim Kim, Ian McGonigle

Open access · goldAbstract read
In one paragraph

Article in BMC medical ethics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
3.0field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 18 citations in OpenAlex.

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  10. Current oncology (Toronto, Ont.) · 2022
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 1 institution in 1 country.

Ross CheungSchool of Social Sciences, Nanyang Technological University, 48 Nanyang Avenue, Singapore, Singapore, 639818.ORCID 0000-0002-5222-874X
Shreshtha JollySchool of Biological Sciences, Nanyang Technological University, 60 Nanyang Drive, Singapore, Singapore, 637551.ORCID 0000-0001-5980-9822
Manoj VimalSchool of Social Sciences, Nanyang Technological University, 48 Nanyang Avenue, Singapore, Singapore, 639818.ORCID 0000-0001-6329-4059
Hie Lim KimAsian School of the Environment, Singapore Center for Environmental Life Sciences Engineering, Nanyang Technological University, 50 Nanyang Ave, Singapore, Singapore, 637459.ORCID 0000-0003-3080-9524
Ian McGonigleSchool of Social Sciences, Nanyang Technological University, 48 Nanyang Avenue, Singapore, Singapore, 639818. ianmcgonigle@ntu.edu.sg.ORCID 0000-0003-0837-080X
Nanyang Technological University · SG

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundAs a consequence of precision medicine initiatives, genomic technologies have rapidly spread around the world, raising questions about genetic privacy and the ethics of data sharing. Previous scholarship in bioethics and science and technology studies has made clear that different nations have varying expectations about trust, transparency, and public reason in relation to emerging technologies and their governance. The key aims of this article are to assess genetic literacy, perceptions of genetic testing, privacy concerns, and governing norms amongst the Singapore population by collecting surveys.

methodsThis study investigated genetic literacy and broad public attitudes toward genetic tests in Singapore with an online public survey (n = 560). To assess potential changes in attitudes following receipt of results from a genetic test, we also surveyed undergraduate students who underwent a genetic screen as part of a university class before and after they received their test results (n = 25).

resultsPublic participants showed broad support for the use of genetic tests; scored an average of 48.9% in genetic literacy; and expressed privacy concerns over data sharing and a desire for control over their genetic data. After taking a genetic test and receiving genetic test results, students reported less fear of genetic tests while other attitudes did not change significantly.

conclusionThese findings highlight the potential of genetic education and active engagement with genetic testing to increase support and participation in genomic projects, PM, and biobanking initiatives; and they suggest that data privacy protections could potentially reduce discrimination by giving participants control over who can access their data. More specifically, these findings and the dataset we provide may be helpful in formulating culturally sensitive education programs and regulations concerning genomic technologies and data privacy.

Indexed as

Biological Specimen BanksGenetic TestingAttitudeFearHumansSingaporeBioethicsGenetic testingPrecision medicinePublic attitudesSingapore

Identifiers

PMID35081954
PMCPMC8791081
OpenAlexW4210266920

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.