Evidence map›Paper›PMID 35081940›Full record

ArticleBMC women's health2022

Challenges of and possible solutions for living with endometriosis: a qualitative study.

Gabriella Márki, Dorottya Vásárhelyi, Adrien Rigó, Zsuzsa Kaló, Nándor Ács, Attila Bokor

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC women's health, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
31citing papers in PubMed, 2 pooled it
10.9field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

31 citing papers in PubMed, 2 syntheses or guidelines pooled it, 63 citations in OpenAlex.

  1. Experiences of pain communication in endometriosis: A meta-synthesis.Acta obstetricia et gynecologica Scandinavica · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 2 institutions in 1 country.

Gabriella MárkiDoctoral School of Psychology, Eötvös Loránd University, Budapest, 1064, Hungary.
Dorottya VásárhelyiInstitute of Psychology, Eötvös Loránd University, Izabella Street 46, Budapest, 1064, Hungary.
Adrien RigóInstitute of Psychology, Eötvös Loránd University, Izabella Street 46, Budapest, 1064, Hungary.
Zsuzsa KalóInstitute of Psychology, Eötvös Loránd University, Izabella Street 46, Budapest, 1064, Hungary.
Nándor ÁcsDepartment of Obstetrics and Gynecology, Faculty of Medicine, Semmelweis University, Baross Street 27, Budapest, 1088, Hungary.
Attila BokorDepartment of Obstetrics and Gynecology, Faculty of Medicine, Semmelweis University, Baross Street 27, Budapest, 1088, Hungary. attila.z.bokor@gmail.com.
Eötvös Loránd University · HUSemmelweis University · HU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundEndometriosis as a chronic gynecological disease has several negative effects on women's life, thereby placing a huge burden on the patients and the health system. The negative impact of living with endometriosis (impaired quality of life, diverse medical experiences) is detailed in the literature, however, we know less about patients' self-management, social support, the meaning of life with a chronic disease, and the needs of patients. To implement a proper multidisciplinary approach in practice, we need to have a comprehensive view of the complexity of endometriosis patients' life and disease history.

methodsFour focus group discussions were conducted between October 2014 and November 2015 by a team consisting of medical and psychological specialists. 21 women (age: 31.57; SD = 4.45) with surgical and histological confirmation of endometriosis were included in the study. Discussions were audiotaped and transcribed verbatim, and a 62,051-word corpus was analyzed using content analysis.

resultsFour main themes emerged from the analysis: (1) the impact of endometriosis on quality of life, (2) medical experiences, (3) complementary and alternative treatments, and (4) different coping strategies in disease management. All themes were interrelated and highly affected by a lack of information and uncertainty caused by endometriosis. A supporting doctor-patient relationship, active coping, and social support were identified as advantages over difficulties. Finding the positive meaning of life after accepting endometriosis increased the possibility of posttraumatic growth. Furthermore, women's needs were identified at all levels of the ecological approach to health promotion.

conclusionsOur results highlight the need for multidisciplinary healthcare programs and interventions to find solutions to the difficulties of women with endometriosis. To achieve this goal, a collaboration of professionals, psychologists, and support organizations is needed in the near future.

Indexed as

EndometriosisAdaptation, PsychologicalAdultChronic DiseaseFemaleHumansPhysician-Patient RelationsQualitative ResearchQuality of LifeCopingEndometriosisFocus groupHealth-related quality of lifePsychosocial impact

Identifiers

PMID35081940
PMCPMC8793269
OpenAlexW4210270799

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.