Evidence map›Paper›PMID 35081150›Full record

ArticlePloS one2022

Utilization of social media communities for caregiver information support in stroke recovery: An analysis of content and interactions.

Elton H Lobo, Tara Johnson, Anne Frølich, Finn Kensing, Lene J Rasmussen, Sarah M Hosking, Amy T Page, Patricia M Livingston, Sheikh Mohammed Shariful Islam, John Grundy and 1 more

Abstract read
In one paragraph

Article in PloS one, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Review
  4. Article
  5. Article
  6. Article
  7. YouTube as a possible learning platform for patients and their family caregivers for gastrostomy tube feeding: A cross-sectional study.Nutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition · 2025
    Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Article
  13. Use of Social Media in Stroke: A Systematic Review.Annals of Indian Academy of Neurology
    Article
  14. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Elton H LoboSchool of Information Technology, Deakin University, Geelong, VIC, Australia.ORCID 0000-0003-0096-6318
Tara JohnsonDepartment of Public Health, University of Copenhagen, Copenhagen, Denmark.
Anne FrølichDepartment of Public Health, University of Copenhagen, Copenhagen, Denmark.
Finn KensingDepartment of Computer Science, University of Copenhagen, Copenhagen, Denmark.
Lene J RasmussenDepartment of Cellular and Molecular Medicine, University of Copenhagen, Copenhagen, Denmark.
Sarah M HoskingFaculty of Health, Deakin University, Geelong, VIC, Australia.
Amy T PagePharmacy Department, Alfred Health, Melbourne, VIC, Australia.
Patricia M LivingstonFaculty of Health, Deakin University, Geelong, VIC, Australia.
Sheikh Mohammed Shariful IslamInstitute for Physical Activity and Nutrition (IPAN), Deakin University, Geelong, Australia.ORCID 0000-0001-7926-9368
John GrundyFaculty of Information Technology, Monash University, Melbourne, VIC, Australia.
Mohamed AbdelrazekSchool of Information Technology, Deakin University, Geelong, VIC, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundCaregivers often use the internet to access information related to stroke care to improve preparedness, thereby reducing uncertainty and enhancing the quality of care.

methodSocial media communities used by caregivers of people affected by stroke were identified using popular keywords searched for using Google. Communities were filtered based on their ability to provide support to caregivers. Data from the included communities were extracted and analysed to determine the content and level of interaction.

resultsThere was a significant rise in the use of social media by caregivers of people affected by stroke. The most popular social media communities were charitable and governmental organizations with the highest user interaction-this was for topics related to stroke prevention, signs and symptoms, and caregiver self-care delivered through video-based resources.

conclusionFindings show the ability of social media to support stroke caregiver needs and practices that should be considered to increase their interaction and support.

Indexed as

CaregiversQuality of LifeSocial MediaSocial SupportStrokeStroke RehabilitationHumans

Identifiers

PMID35081150
PMCPMC8791510

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.