Evidence map›Paper›PMID 35078835›Full record

ArticleBMJ open2022

Research priorities to improve the health of children and adults with dysphagia: a National Institute of Health Research and Royal College of Speech and Language Therapists research priority setting partnership.

Emma Pagnamenta, Lauren Longhurst, Anne Breaks, Katie Chadd, Amit Kulkarni, Val Bryant, Kathy Tier, Vanessa Rogers, Sai Bangera, Josephine Wallinger and 3 more

Open access · goldAbstract read
In one paragraph

Article in BMJ open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 1 pooled it
3.7field-weighted citation impact, top 8% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 1 synthesis or guideline pooled it, 13 citations in OpenAlex.

  1. Identifying Common Patient-Oriented Priorities for Child and Adolescent Health Research and Care: A Systematic Review of Priority Setting Partnerships.Health expectations : an international journal of public participation in health care and health policy · 2025
    Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Observational
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors at 9 institutions in 2 countries.

Emma PagnamentaSchool of Psychology and Clinical Language Sciences, University of Reading, Reading, UK e.pagnamenta@reading.ac.uk.ORCID 0000-0002-4703-3163
Lauren LonghurstChild and Adolescent Mental Health Service, Whittington Health NHS Trust, London, UK.
Anne BreaksAcute Speech and Language Therapy Service, Evelina London Children's Hospital, London, UK.
Katie ChaddResearch and Outcomes, Royal College of Speech and Language Therapists, London, UK.ORCID 0000-0003-3638-5531
Amit KulkarniResearch and Outcomes, Royal College of Speech and Language Therapists, London, UK.
Val BryantPatient representative, England, UK.
Kathy TierNIHR Evaluation, Trials and Studies Coordinating Centre, National Institute for Health Research, London, UK.
Vanessa RogersTeam Symplify Ltd, Banbury, UK.
Sai BangeraSchool of Health and Social Care, University of Essex, Colchester, UK.
Josephine WallingerDivision of Language and Communication Science, City University of London, London, UK.ORCID 0000-0003-4393-7904
Paula LeslieCenter for Bioethics & Health Law, University of Pittsburgh, Pittsburgh, Pennsylvania, USA.ORCID 0000-0002-0379-9044
Rebecca PalmerSchool of Health and Related Research, University of Sheffield, Sheffield, UK.
Victoria JoffeSchool of Health and Social Care, University of Essex, Colchester, UK.ORCID 0000-0001-9132-2889
Royal College of Speech and Language Therapists · GBUniversity of Essex · GBCity, University of London · GBEvelina London Children's Healthcare · GBNational Institute for Health Research · GBUniversity of Pittsburgh · USUniversity of Reading · GBUniversity of Sheffield · GBWhittington Health NHS Trust · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveTo conduct the first UK-wide research priority setting project informing researchers and funders of critical knowledge gaps requiring investigation to improve the health and well-being of patients with eating, drinking and swallowing disorders (dysphagia) and their carers.

designA priority setting partnership between the National Institute of Health Research (NIHR) and the Royal College of Speech and Language Therapists using a modified nominal group technique. A steering group and NIHR representatives oversaw four project phases: (1) survey gathering research suggestions, (2) verification and aggregation of suggestions with systematic review research recommendations, (3) multistakeholder workshop to develop research questions, (4) interim priority setting via an online ranking survey and (5) final priority setting.

settingUK health services and community.

participantsPatients with dysphagia, carers and professionals who work with children and adults with dysphagia from the UK.

resultsOne hundred and fifty-six speech and language therapists submitted 332 research suggestions related to dysphagia. These were mapped to 88 research recommendations from systematic reviews to form 24 'uncertainty topics' (knowledge gaps that are answerable by research). Four patients, 1 carer and 30 healthcare professionals collaboratively produced 77 research questions in relation to these topics. Thereafter, 387 patients, carers and professionals with experience of dysphagia prioritised 10 research questions using an interim prioritisation survey. Votes and feedback for each question were collated and reviewed by the steering and dysphagia reference groups. Nine further questions were added to the long-list and top 10 lists of priority questions were agreed.

conclusionThree top 10 lists of topics grouped as adults, neonates and children, and all ages, and a further long list of questions were identified by patients, carers and healthcare professionals as research priorities to improve the lives of those with dysphagia.

Indexed as

Biomedical ResearchDeglutition DisordersAdultChildHealth PrioritiesHumansInfant, NewbornSpeechSurveys and Questionnairesdevelopmental neurology & neurodisabilityhead & neck tumoursneurologyspeech pathologystroke medicine

Identifiers

PMID35078835
PMCPMC8796217
OpenAlexW4207019596

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.