Evidence map›Paper›PMID 35067645›Full record

Observational studyNursing research

Addressing Challenges in Recruiting Diverse Populations for Research: Practical Experience From a P20 Center.

Fay Wright, Susan Kohl Malone, Agnes Wong, Gail D'Eramo Melkus, Victoria Vaughan Dickson

Abstract readObservational Study
In one paragraph

Observational study in Nursing research. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

15 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Fay WrightFay Wright, PhD, RN, APRN-BC, Susan Kohl Malone, PhD, RN, Agnes Wong, MA, Gail D'Eramo Melkus, EdD, RN, FAAN, and Victoria Vaughan Dickson, PhD, RN, FAHA, FHFSA, FAAN, New York University Rory Meyers College of Nursing, New York.ORCID 0000-0001-9636-0411
Susan Kohl MaloneORCID 0000-0001-6861-9377
Gail D'Eramo MelkusORCID 0000-0002-5859-4118
Victoria Vaughan DicksonORCID 0000-0002-6673-1960

Funding

P20 Exploratory Center for Precision Health in Diverse PopulationsP20NR018075 · NINR · NEW YORK UNIVERSITY · PI MELKUS, GAIL D, VAUGHAN DICKSON, VICTORIA · 2018 to 2022
$1.9M
NINR NIH HHS P20 NR018075
6 · The paper itself

Abstract

backgroundImproving the recruitment and retention of underrepresented groups in all research areas is essential for health equity. However, achieving and retaining diverse samples is challenging. Barriers to recruitment and retention of diverse participants include socioeconomic and cultural factors and practical challenges (e.g., time and travel commitments).

objectivesThe purpose of this article is to describe the successful recruitment and retention strategies used by two related studies within a P20 center funded by the National Institute of Nursing Research focused on precision health research in diverse populations with multiple chronic conditions, including metabolic syndrome.

methodsTo address the complexity, biodiversity, and effect of metabolic syndrome and multiple chronic conditions, we developed culturally appropriate, multipronged recruitment and retention strategies for a pilot intervention study and a longitudinal observational pilot study within our P20 center. The following are the underlying principles that guided the recruitment and retention strategies: (a) flexibility, (b) active listening and bidirectional conversations, and (c) innovative problem solving.

resultsThe intervention study (Pilot 1) enrolled 49 participants. The longitudinal observational study (Pilot 2) enrolled 45 participants. Women and racial/ethnic minorities were significantly represented in both. In Pilot 1, most of the participants completed the intervention and all phases of data collection. In Pilot 2, most participants completed all phases of data collection and chose to provide biorepository specimens. DISCUSSION: We developed a recruitment and retention plan building on standard strategies for a general medical population. Our real-world experiences informed the adaption of these strategies to facilitate the participation of individuals who often do not participate in research-specifically, women and racial/ethnic populations. Our experience across two pilot studies suggests that recruiting diverse populations should build flexibility in the research plan at the outset.

Indexed as

Metabolic SyndromeMultiple Chronic ConditionsEthnicityFemaleHumansPatient SelectionRacial Groups

Identifiers

PMID35067645
PMCPMC9038626

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.