Evidence map›Paper›PMID 35064449›Full record

ArticleJournal of neuro-oncology2022

Psychosocial profiles of risk and resiliency in neurofibromatoses: a person-centered analysis of illness adaptation.

Sarah M Bannon, Sarah W Hopkins, Victoria A Grunberg, Ana-Maria Vranceanu

Registry-linked trialAbstract read
PubMed Publisher
In one paragraph

Article in Journal of neuro-oncology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03406208 (Resiliency Training for Adults With Neurofibromatosis Via Live Videoconferencing), which is not on this map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
0.4field-weighted citation impact, top 41% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03406208 nacompletednot on this map

Resiliency Training for Adults With Neurofibromatosis Via Live Videoconferencing

TypeinterventionalSponsorMassachusetts General HospitalRan2017 to 2022Enrolled228ConditionsNeurofibromatoses, Neurofibromatosis 1, Neurofibromatosis 2, SchwannomatosisArmsStress and Symptom Management Program 1, Stress and Symptom Management Program 2
3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 3 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 1 institution in 1 country.

Sarah M Bannon *Integrated Brain Health Clinical and Research Program, Department of Psychiatry, Massachusetts General Hospital, Harvard Medical School, 1 Bowdoin Square Suite 100, Boston, MA, USA.
Sarah W Hopkins *Integrated Brain Health Clinical and Research Program, Department of Psychiatry, Massachusetts General Hospital, Harvard Medical School, 1 Bowdoin Square Suite 100, Boston, MA, USA.
Victoria A GrunbergIntegrated Brain Health Clinical and Research Program, Department of Psychiatry, Massachusetts General Hospital, Harvard Medical School, 1 Bowdoin Square Suite 100, Boston, MA, USA.
Ana-Maria VranceanuIntegrated Brain Health Clinical and Research Program, Department of Psychiatry, Massachusetts General Hospital, Harvard Medical School, 1 Bowdoin Square Suite 100, Boston, MA, USA. avranceanu@mgh.harvard.edu.ORCID http://orcid.org/0000-0002-9194-5223
Harvard University · US

Funding

Translational Neuroscience Training for CliniciansT32MH112485 · NIMH · MASSACHUSETTS GENERAL HOSPITAL · PI BUCKNER, RANDY L, ROFFMAN, JOSHUA LAWRENCE · 2018 to 2022
$1.7M
Resilient Families (R-FAM): A dyadic resiliency intervention for parents of babies in neonatal intensive careK23HD110597 · NICHD · MASSACHUSETTS GENERAL HOSPITAL · PI Victoria Ann Grunberg · 2023 to 2026
$676k
NICHD NIH HHS K23 HD110597
6 · The paper itself

Abstract

objectivesWe sought to characterize psychosocial profiles of adaptation to neurofibromatosis (NF).

methodsParticipants (N = 224) completed self-report measures of psychosocial functioning, including risk (i.e., perceived stress, depression, anxiety) and resiliency (i.e., gratitude, optimism, coping, social support, mindfulness, empathy). We used a TwoStep hierarchical cluster analysis to determine clusters reflecting adaptation to NF.

resultsThe analysis revealed two distinct groups, with the "Low Adaptation" group defined by high emotional distress and low resiliency (n = 130; 57% of participants), and the "High Adaptation" group defined by low emotional distress and high resiliency (n = 85; 37% of participants). Clusters differed significantly across nearly all criterion variables, as well as quality of life and pain interference.

conclusionBoth risk and resiliency factors are important for understanding psychosocial adaptation to NF. Findings suggest that clinical providers should prioritize screening and intervention methods targeting these variables to promote positive adaptation to NF.

trial registrationClinicalTrials.gov NCT03406208; https://clinicaltrials.gov/ct2/show/NCT03406208 (Archived by WebCite at http://www.webcitation.org/72ZoTDQ6h ).

Indexed as

Adaptation, PsychologicalNeurofibromatosesHumansResilience, PsychologicalRiskAdaptation to illnessEmotional distressNeurofibromatosisResiliency

Identifiers

PMID35064449
OpenAlexW4206988898

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.