ArticleGenetics in medicine : official journal of the American College of Medical Genetics2022
Self-rated family health history knowledge among All of Us program participants.
Article in Genetics in medicine : official journal of the American College of Medical Genetics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Low income and health literacy: a systematic scoping review.Archives of public health = Archives belges de sante publique · 2025Pooled it
- A qualitative study exploring young adult's attitudes towards adopting whole genome sequencing into newborn screening programs.European journal of human genetics : EJHG · 2026Article
- Multiple Myeloma Screening Education: A Community-Based Health Literacy Intervention.Cancer research communications · 2026Article
- Knowledge, Perceptions, and Barriers to Collection of Family Health History Data.Journal of the American Board of Family Medicine : JABFM · 2026Article
- Health Literacy and Awareness of Family Health History in the All of Us Research Program.Public health genomics · 2026Article
- Narratives before numbers: Reimagining conversations about race, ethnicity, and ancestry information in genetic counseling practice.Journal of genetic counseling · 2025Article
- Perceptions of family health history in an East Baltimore community.Journal of community genetics · 2025Article
- Incomplete Family History and Meeting Algorithmic Criteria for Genetic Evaluation of Hereditary Cancer.JAMA network open · 2025Article
- A comparison of family health history of breast cancer, colorectal cancer, and diabetes in self-reported survey and electronic health records data, All of Us Research Program.Genetics in medicine open · 2025Article
- Women's preferences for genetic screening in routine care: A qualitative study.Patient education and counseling · 2025Article
- Pharmacogenotyping disproves genetic cause of drug-related problems in family history: a case report.BMC anesthesiology · 2024Article
- Improving Care for Marginalized Populations at Risk for Hereditary Cancer Syndromes: Innovations that Expanded Reach in the CHARM Study.Public health genomics · 2024Article
- Association Between a First-Degree Family History and Self-Reported Personal History of Obesity, Diabetes, and Heart and Blood Conditions: Results From the All of Us Research Program.Journal of the American Heart Association · 2023Article
- Rate of Pathogenic Germline Variants in Patients With Lung Cancer.JCO precision oncology · 2023Review
- Family and personal history of cancer in the All of Us research program for precision medicine.PloS one · 2023Article
- Translational Bioinformatics to Enable Precision Medicine for All: Elevating Equity across Molecular, Clinical, and Digital Realms.Yearbook of medical informatics · 2022Review
Corrections and comments
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Authors and funding
2 authors.
Funding
Abstract
purposeDisparities in access to genetics services are well-documented. Family health history is routinely used to determine whether patients should be screened for heritable conditions. We sought to explore variation in levels of self-rated family health history knowledge as a possible contributer to this disparity.
methodsWe performed a cross-sectional analysis of survey data from the All of Us Research Program. We compared the characteristics of participants who reported "None," "Some", and "A lot" of family health history knowledge using multinomial logistic regression.
resultsSelf-rated family health history data were available for 116,799 participants. A minority of survey participants (37%) endorsed "A lot" of knowledge about their family health history (n = 43,661). Most participants (60%) endorsed "Some" family health history knowledge (n = 69,914) and 3% (n = 3224) endorsed "None." In adjusted analyses, those who indicated "Some" family health history knowledge or "None" were more likely to be assigned male sex at birth, identify as possible gender and sexual minorities, have a self-reported race other than White, have a lower household annual income (<$25,000), or report lower educational attainment (<high school graduate) than those who endorsed "A lot" of knowledge and the reference groups.
conclusionFamily health history knowledge may be limited, especially among traditionally underserved populations.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.