ArticleInternational journal of environmental research and public health2022
Advance Care Planning in Neurodegenerative Disorders: A Scoping Review.
Article in International journal of environmental research and public health, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
17 citing papers in PubMed, 33 citations in OpenAlex.
- Impact of a virtual nurse-led Early paLlIative Care IntervenTion (ELICIT) randomized controlled trial.NPJ digital medicine · 2026Article
- Communicating in Palliative Care for Neurodegenerative Diseases: A Qualitative Study on Professional-Family Interactions.Brain sciences · 2026Article
- Advance care planning among stroke patients: A scoping review.International journal of nursing sciences · 2025Review
- Bridging the gap in neurodegenerative disease care: a needs assessment for a Master's program in Sri Lanka.BMC research notes · 2025Article
- Associations Between End-Stage ALS Care and Specialty Palliative Care: A Hypothesis-Generating Study.Muscle & nerve · 2025Article
- Between hope and future planning: the dementia journey for care partners through the lens of relational autonomy.BMC medical ethics · 2025Article
- Quality Measure Adherence in Parkinson's Disease: A Single Center Experience***Parkinson's Disease Quality Measures.Clinical parkinsonism & related disorders · 2025Article
- Education needs in palliative care and advance care planning of Italian residents in neurology: an online survey.European journal of neurology · 2024Article
- User appraisal of a booklet for advance care planning in multiple sclerosis: a multicenter, qualitative Italian study.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2024Article
- Evaluating the pragmatic characteristics of advance care planning outcome measures in dementia clinical trials: A scoping review.Journal of the American Geriatrics Society · 2023Article
- Health professional involvement in the formulation of research questions: findings from the Italian guideline on palliative care in adults with glioma.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2023Article
- Editorial: Shared decision-making in neurology.Frontiers in neurology · 2023Article
- Negotiating the Beginning of Care: A Grounded Theory Study of Health Services for Amyotrophic Lateral Sclerosis.Brain sciences · 2022Article
- Italian law n. 219/2017 on consent and advance directives: survey among Ethics Committees on their involvement and possible role.BMC medical ethics · 2022Article
- "This is how I want it": Exploring the use of a workbook with persons with dementia to support advance care planning engagement.Dementia (London, England) · 2022Article
- Article
- Neuronal Hyperexcitability and Free Radical Toxicity in Amyotrophic Lateral Sclerosis: Established and Future Targets.Pharmaceuticals (Basel, Switzerland) · 2022Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors at 6 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Advance care planning (ACP) is increasingly acknowledged as a key step to enable patients to define their goals/preferences for future medical care, together with their carers and health professionals. We aimed to map the evidence on ACP in neurodegenerative disorders. We conducted a scoping review by searching PubMed (inception-December 28, 2020) in addition to trial, review, and dissertation registers. From 9367 records, we included 53 studies, mostly conducted in Europe (45%) and US-Canada (41%), within the last five years. Twenty-six percent of studies were qualitative, followed by observational (21%), reviews (19%), randomized controlled trials (RCTs, 19%), quasi-experimental (11%), and mixed-methods (4%). Two-thirds of studies addressed dementia, followed by amyotrophic lateral sclerosis (13%), and brain tumors (9%). The RCT interventions (all in dementia) consisted of educational programs, facilitated discussions, or videos for patients and/or carers. In conclusion, more research is needed to investigate barriers and facilitators of ACP uptake, as well as to develop/test interventions in almost all the neurodegenerative disorders. A common set of outcome measures targeting each discrete ACP behavior, and validated across the different diseases and cultures is also needed.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.