ArticleJournal of clinical medicine2022
Narrative Medicine: A Digital Diary in the Management of Bone and Soft Tissue Sarcoma Patients. Preliminary Results of a Multidisciplinary Pilot Study.
Article in Journal of clinical medicine, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed.
- How recreational therapies impact physiological and psychosocial outcomes in cancer patients: a review.Oncology reviews · 2026Review
- Digital integration of narrative medicine and patient-reported outcome measures to improve understanding of quality of life in metastatic breast cancer: the PERGIQUAL study.The oncologist · 2025Observational
- Allies not enemies-creating a more empathetic and uplifting patient experience through technology and art.Strahlentherapie und Onkologie : Organ der Deutschen Rontgengesellschaft ... [et al] · 2025Review
- Pharmaceutical Humanities and Narrative Pharmacy: An Emerging New Concept in Pharmacy.Pharmaceuticals (Basel, Switzerland) · 2025Review
- Narrative Medicine: theory, clinical practice and education - a scoping review.BMC health services research · 2024Article
- Evaluating a nurse-led narrative interview intervention with cancer patients with a first diagnosis: A feasibility study.Heliyon · 2024Article
- An Integrated Care Approach to Improve Well-Being in Breast Cancer Patients.Current oncology reports · 2024Review
- Narrative Medicine: A Digital Diary in the Management of Patients with Bone and Soft Tissue Sarcoma-A Multidisciplinary Pilot Study.Journal of clinical medicine · 2023Article
- Extracting Medical Information From Free-Text and Unstructured Patient-Generated Health Data Using Natural Language Processing Methods: Feasibility Study With Real-world Data.JMIR formative research · 2023Article
- How does social media use influence the mental health of pancreatic cancer patients: a chain mediating effect of online social support and psychological resilience.Frontiers in public health · 2023Article
- Digital integrated dramatherapy: A feasibility study in women undergoing assisted reproductive technology.Frontiers in psychology · 2022Article
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Authors and funding
14 authors.
Funding
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Abstract
backgroundGuidelines for the implementation of narrative medicine in clinical practice exist; however, in Italy, no standard methodology is currently available for the management of oncological patients. Since 2017, at the "Regina Elena" National Cancer Institute, studies using "digital narrative diaries" (DNMLAB platform) have been carried out; this article focuses on a pilot, uncontrolled, real-life study aiming to evaluate the utility of DNM integrated with the care pathway of patients with bone and limb soft tissue sarcomas.
methodsAdult patients completed the diary during treatment or follow-up by writing their narrative guided by a set of narrative prompts. The endpoints were: (a) patients' opinions about therapeutic alliance, awareness, and coping ability; (b) healthcare professionals' (HCPs') opinions about communication, therapeutic alliance, and information collection. Open- and closed-ended questions (Likert score: 1-5) were used to assess the items.
resultsAt the interim analysis of data from seven patients and five HCPs, DNM was shown to improve: (a) the expression of patients' point of view, the perception of effective taking charge, disease awareness, and self-empowerment (score: 4.8/5); (b) patients' communication, relationships, and illness knowledge (score: 4.6-4.8/5).
conclusionsThe preliminary results supported the need to integrate patients' narratives with clinical data and encourage further research.
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