Evidence map›Paper›PMID 35053854›Full record

ArticleBrain sciences2022

Caregiver Burden and Quality of Life in Late Stage Parkinson's Disease.

Kristina Rosqvist, Anette Schrag, Per Odin, The CLaSP Consortium

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Brain sciences, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
31citing papers in PubMed, 1 pooled it
4.1field-weighted citation impact, top 5% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

31 citing papers in PubMed, 1 synthesis or guideline pooled it, 34 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Strategy Use Among People With Parkinson's Disease During the Weekly Calendar Planning Activity.The American journal of occupational therapy : official publication of the American Occupational Therapy Association · 2026
    Article
  4. Article
  5. Article
  6. Review
  7. Review
  8. Article
  9. Article
  10. Article
  11. Review
  12. Pesticide Exposure and Parkinson's Disease: A Qualitative Study of Experiences in Ireland.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  13. Review
  14. There is 'no cure for caregiving': the experience of women caring for husbands living with Parkinson's disease.International journal of qualitative studies on health and well-being · 2024
    Article
  15. Review
  16. Article
  17. Factors associated with self-rated health in people with late-stage parkinson's and cognitive impairment.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024
    Article
  18. Review
  19. Article
  20. Compound impact of cognitive and physical decline: A qualitative interview study of people with Parkinson's and cognitive impairment, caregivers and professionals.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 2 institutions in 2 countries.

Kristina RosqvistRestorative Parkinson Unit, Division of Neurology, Department of Clinical Sciences Lund, Faculty of Medicine, Lund University, Wigerthuset, Remissgatan 4, 221 85 Lund, Sweden.ORCID 0000-0002-3861-8012
Anette SchragQueen Square Institute of Neurology, University College London, London WC1N 3BG, UK.
Per OdinRestorative Parkinson Unit, Division of Neurology, Department of Clinical Sciences Lund, Faculty of Medicine, Lund University, Wigerthuset, Remissgatan 4, 221 85 Lund, Sweden.
The CLaSP Consortium
Lund University · SENational Hospital for Neurology and Neurosurgery · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Parkinson's disease (PD) is a chronic, progressive, neurodegenerative disease involving both motor and non-motor symptoms (NMS). In the late stage of the disease, Hoehn and Yahr (HY) stages IV-V, the symptomatology is often severe and patients become increasingly dependent on help in their daily life, resulting in an increased burden for the informal caregivers. To assess the implications of the caregiver burden, caregiver quality of life (QoL) was assessed in 74 informal caregivers to patients in late stage PD, by the Alzheimer's Patient Partners Life Impact Questionnaire (APPLIQue), which has been found useful also in PD. The majority of caregivers were the spouse/partner. Individual items provided information on which aspects of caregiver burden were the most common, i.e., items: "feel guilty if not there" (71% affirmed), "situation wears me down" (65% affirmed) and "always on my mind" (61% affirmed). In simple linear regression analyses, female patient gender (

Indexed as

caregiver burdeninformal caregiverlate stageParkinson’s disease

Identifiers

PMID35053854
PMCPMC8773513
OpenAlexW4205246505

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.