Evidence map›Paper›PMID 35048976›Full record

ArticleJournal of the American Medical Informatics Association : JAMIA2022

Knowledge and insights from a maturing international clinical quality registry.

Fanny Sampurno, Christoph Kowalski, Sarah E Connor, Anissa V Nguyen, Àngels Pont Acuña, Chi-Fai Ng, Claire Foster, Günter Feick, Olatz Garin Boronat, Sebastian Dieng and 9 more

Open access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of the American Medical Informatics Association : JAMIA, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
0.4field-weighted citation impact, top 33% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed, 3 citations in OpenAlex.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

19 authors at 11 institutions in 7 countries.

Fanny SampurnoSchool of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.ORCID 0000-0003-0462-9044
Christoph KowalskiCertification, German Cancer Society-Krebsgesellschaft, Berlin, Germany.
Sarah E ConnorDepartment of Urology, David Geffen School of Medicine, University of California, Los Angeles, California, USA.
Anissa V NguyenDepartment of Urology, David Geffen School of Medicine, University of California, Los Angeles, California, USA.
Àngels Pont AcuñaHealth Services Research Group, IMIM (Hospital del Mar Medical Research Institute), Barcelona, Spain.
Chi-Fai NgSH Ho Urology Centre, The Chinese University of Hong Kong, Hong Kong, China.
Claire FosterSchool of Health Sciences, University of Southampton, Southampton, UK.ORCID 0000-0001-5061-6055
Günter FeickPatient Support Association Bundesverband Prostatakrebs Selbsthilfe, Bonn, Germany.
Olatz Garin BoronatHealth Services Research Group, IMIM (Hospital del Mar Medical Research Institute), Barcelona, Spain.
Sebastian DiengData Management, OnkoZert, Neu-Ulm, Germany.
Silvana BrglevskaMovember Foundation, Melbourne, Victoria, Australia.
Stephanie FerranteDepartment of Urology, University of Michigan (on behalf of MUSIC), Ann Arbor, Michigan, USA.
Steven LeungSH Ho Urology Centre, The Chinese University of Hong Kong, Hong Kong, China.
Paul VillantiMovember Foundation, Melbourne, Victoria, Australia.
Caroline M MooreDepartment of Urology, Division of Surgical and Interventional Science, University College London, London, UK.
Ian D GrahamSchool of Epidemiology and Public Health, University of Ottawa, Ottawa, Ontario, Canada.
Jeremy L MillarSchool of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.ORCID 0000-0001-8202-8602
Mark S LitwinDepartment of Urology, David Geffen School of Medicine, Department of Health Policy & Management, Fielding School of Public Health, University of California, Los Angeles, California, USA.ORCID 0000-0002-2318-344X
Nathan PapaSchool of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.ORCID 0000-0002-3188-1803
Monash University · AUUniversity of California, Los Angeles · USChinese University of Hong Kong · HKHospital Del Mar · ESMovember Foundation · AUBundesverband Glaukom-Selbsthilfe · DEGerman Cancer Society · DEUniversity College London · GBUniversity of Michigan · USUniversity of Ottawa · CAUniversity of Southampton · GB

Funding

CIHR Foundation FDN# 143237CIHR Foundation Grant (FDN 143237Movember Foundation
6 · The paper itself

Abstract

Since 2017, the TrueNTH Global Registry (TNGR) has aimed to drive improvement in patient outcomes for individuals with localized prostate cancer by collating data from healthcare institutions across 13 countries. As TNGR matures, a systematic evaluation of existing processes and documents is necessary to evaluate whether the registry is operating as intended. The main supporting documents: protocol and data dictionary, were comprehensively reviewed in a series of meetings over a 10-month period by an international working group. In parallel, individual consultations with local institutions regarding a benchmarking quality-of-care report were conducted. Four consensus areas for improvement emerged: updating operational definitions, appraisal of the recruitment process, refinement of data elements, and improvement of data quality and reporting. Recommendations presented were drawn from our collective experience and accumulated knowledge in operating an international registry. These can be readily generalized to other health-related reporting programs beyond clinical registries.

Indexed as

BenchmarkingDelivery of Health CareHumansMaleRegistriesaudit and feedbackcollaborative working groupdocumentationinternational clinical quality registryprocess evaluationshared-learning

Identifiers

PMID35048976
PMCPMC9006702
OpenAlexW4206647565

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.