Evidence map›Paper›PMID 35044869›Full record

ArticleTrauma, violence & abuse2023

Adolescents' Experiences of Participating in Sensitive Research: A Scoping Review of Qualitative Studies.

Lakshmi Neelakantan, Deborah Fry, Lani Florian, Franziska Meinck

Abstract readScoping Review
In one paragraph

Article in Trauma, violence & abuse, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

15 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. How Lived Experience Advisory Groups Contribute to the Design and Conduct of Mental Health Research.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  3. Review
  4. Better Design, Better Engagement, Better Data: Adolescents' Insights for Improving Health Research.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  5. Article
  6. Acceptability and Feasibility of Health Measures in Preteens: Findings From the ROLO Longitudinal Birth Cohort Study.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  7. Are Adolescents Sensitive About Sensitive Data? Exploring Student Concerns About Privacy, Confidentiality, and Data Use in Health Research.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2025
    Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. The lived experience of weight loss maintenance in young people.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
  13. Article
  14. Review
  15. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Lakshmi NeelakantanDepartment of Psychiatry, University of Oxford, Oxford, UK.ORCID 0000-0002-3913-3447
Deborah FryMoray House School of Education and Sport, The University of Edinburgh, Edinburgh, UK.
Lani FlorianMoray House School of Education and Sport, The University of Edinburgh, Edinburgh, UK.
Franziska MeinckSchool of Social and Political Science, University of Edinburgh, Edinburgh, UK.ORCID 0000-0002-5234-3799

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Despite an increasing emphasis on adolescents' participation rights, there are concerns about their participation in research on sensitive topics, such as trauma and violence. This review reports findings of a scoping review that examined the nature and extent of qualitative studies conducted with adolescents about their experiences of participating in research on sensitive topics. Studies were identified by searching electronic databases and grey literature and reported on qualitative and mixed-methods studies eliciting adolescents' experiences of participating in research on sensitive topics. Seventeen (17) studies were included after screening 4426 records. The scoping review revealed significant adolescent benefits from participation, relating to positive emotions, skill acquisition and enhanced self-efficacy and interpersonal relationships. To a lesser extent, participants also experienced burdens relating to negative emotions, concerns about confidentiality and privacy and inconvenience of participation, which were mitigated by careful attention to research design and researcher engagement and training. Participants shared insights into their motivation to participate, and factors that impacted their experiences of research, such as ethical considerations, including consent procedures, safety and connection in research, study procedures and documentation and researcher characteristics. There were tangible benefits and some burdens involved in adolescents' participation in sensitive research. This review considers implications for research and practice, such as the need to regularly publish findings of consultations, assessing caregiver consent requirements, obtaining adolescent views on study documents and measures and building on existing research, differentiated by age, gender and dis/ability status, especially in diverse and under-represented regions.

Indexed as

Interpersonal RelationsViolenceAdolescentHumansMotivationQualitative Researchchild abusequalitative researchtraumaviolence exposureyouth violence

Identifiers

PMID35044869
PMCPMC10240642

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.