ArticleJournal of child and family studies2022
Barriers to Mental Health Services for Parents and Siblings of Children with Special Health Care Needs.
Article in Journal of child and family studies, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it, 41 citations in OpenAlex.
- Telehealth as a Psychological Intervention for Caregivers of Children with Neurodevelopmental Disorders: A Systematic Review with Effect Sizes.Journal of autism and developmental disorders · 2025Pooled it
- The Emotion and Symptom-Focused Engagement (EASE) Psychotherapeutic Intervention for Parents of Children With Acute Leukemia: A Feasibility Trial.Psycho-oncology · 2025Trial
- Social determinants of mental health influencing the emergency department experiences of Latinx children and adolescents with mental and behavioral health crisis and their care partners: An interpretative phenomenological analysis study.The American journal of orthopsychiatry · 2026Article
- Tailoring acceptance and commitment therapy for parents of children with undiagnosed conditions: a qualitative pre-implementation study.Orphanet journal of rare diseases · 2026Article
- The Emotional and Psychological Impact on Families Raising Children With Special Needs: A Primary Care Perspective.Health science reports · 2026Article
- 'I may have to give up on my career.' Breadwinners or caregivers? Exploring the complexities of work-family conflict among parents of children with neurodevelopmental disabilities.International journal of developmental disabilities · 2026Article
- Psychosocial and caregiving challenges of mothers of children with disabilities in Iran: a qualitative study.BMC psychology · 2025Article
- Care complexity and inequities in caregiving time for undiagnosed infants and toddlers with special health care needs: a cross-sectional study in Japan.International journal for equity in health · 2025Article
- Support Needs of Parents of Children With Congenital Anomalies Across Europe: A EUROlinkCAT Survey.Child: care, health and development · 2025Article
- "Bottom of My Own List:" Barriers and Facilitators to Mental Health Support Use in Caregivers of Children with Neurodevelopmental Support Needs.Journal of autism and developmental disorders · 2025Article
- Risk and Protective Factors Associated with Increased Burden in Caring for Children: An Observational Study of Japanese General Households.Pediatric reports · 2025Article
- Engagement in child psychiatry department appointments: An analysis of electronic medical records in one safety-net hospital in New England, USA.Journal of health services research & policy · 2025Article
- Mental health in children with and without ADHD: the role of physical activity and parental nativity.Child and adolescent psychiatry and mental health · 2025Article
- An integrated clinical approach to children at genetic risk for neurodevelopmental and psychiatric conditions: interdisciplinary collaboration and research infrastructure.Journal of neurodevelopmental disorders · 2024Article
- The Validity of the EuroQol Health and Wellbeing Short Version (EQ-HWB-S) Instrument in Parents of Children With and Without Health Conditions.PharmacoEconomics · 2024Article
- Development and feasibility of a virtual, synchronous mind-body resiliency intervention for fathers of children and youth with special healthcare needs.Brain behavior and immunity integrative · 2024Article
- Parents' Perspectives in Accessing Psychiatric Residential Treatment for Children and Youth: Differential Experiences by Funding Source.Children and youth services review · 2023Article
- Parent Ratings of Health Insurance Adequacy for Children with Emotional, Behavioral, or Developmental Problems.Academic pediatrics · 2023Article
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Caregivers of children with special health care needs (CSHCNs), especially those whose children have emotional, behavioral, or developmental problems (EBDPs), experience considerable strain and stress related to caring for their child's special needs. The enormous burden of caregiving can decrease a parent's ability to provide care, impacting the health of the child, the parents, and overall family functioning. To manage these challenges, these parents report the need for mental health care for themselves or their children, but many families with need go without care. Comprehensive knowledge about barriers to family mental health care for families of CSHCN is lacking. This study examines data from the National Survey of Children with Special Health Care Needs (2005/2006 and 2009/2010) to estimate time-specific, population-based prevalence of fourteen specific barriers to family mental health services and identifies risk factors for experiencing barriers to care for families of CSHCN. Among all CSHCN, cost barriers (33.5%) and lack of insurance (15.9%) were the most commonly reported obstacles to service access in 2005 and 2009, followed by inconvenient service times (12.3%), and locations (8.7%). Reports of these barriers increased significantly from 2005 to 2009. All types of barriers to family mental health services were reported significantly more frequently by CSHCN with EBDPs than by those without. CSHCN's race, insurance, and parent education and income levels were factors associated with cost barriers to family mental health care. Understanding barriers to mental health care for families of CSHCN is critical to creating policy and practice solutions that increase access to mental health care for these families.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.