Evidence map›Paper›PMID 35036915›Full record

ArticlePalliative care and social practice2022

Understanding why patients request euthanasia when it is illegal: a qualitative study in palliative care units on the personal and practical impact of euthanasia requests.

Danièle Leboul, Anne Bousquet, Aline Chassagne, Florence Mathieu-Nicot, Ashley Ridley, Elodie Cretin, Frédéric Guirimand, Régis Aubry

Abstract read
In one paragraph

Article in Palliative care and social practice, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Danièle LeboulPôle recherche et enseignement universitaire 'Soins palliatifs en société' (SPES), Maison Médicale Jeanne Garnier, Paris, France.
Anne BousquetPôle recherche et enseignement universitaire 'Soins palliatifs en société' (SPES), Maison Médicale Jeanne Garnier, Paris, France.
Aline ChassagneClinical Investigation Center (Inserm U1431), University Hospital of Besançon, Besançon, France.
Florence Mathieu-NicotClinical Investigation Center (Inserm U1431), University Hospital of Besançon, Besançon, France.
Ashley RidleyUniversity Bourgogne Franche-Comté, Besançon, France.
Elodie CretinClinical Investigation Center (Inserm U1431), University Hospital of Besançon, Besançon, France.
Frédéric GuirimandPôle recherche et enseignement universitaire 'Soins palliatifs en société' (SPES), Maison Médicale Jeanne Garnier, Paris 75015, France.ORCID https://orcid.org/0000-0003-0767-9987
Régis AubryClinical Investigation Center (Inserm U1431), University Hospital of Besançon, Besançon, France.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

contextSome patients in palliative care units request euthanasia regardless of legislation. Although studies have explored the reasons for these requests, little is known about the subjective, relational, and contextual repercussions for the patient.

objectivesThe aim of this study is to understand the purpose of euthanasia requests from the patient's viewpoint and their personal and practical impact.

methodsWe conducted in-depth interviews with patients requesting euthanasia, their family members, and health care providers in 11 French palliative care units. A thematic analysis of the data was performed.

resultsIn total, 18 patients were interviewed within 48 h of the request being made; 1 week later, 9 patients were interviewed again. Five main themes emerged: assuming the possibility of transgressing the forbidden, a call for unbearable suffering to be recognized, encouragement to change clinical practice, reclaiming a sense of freedom over medical constraints, and imagining a desirable future for oneself.

conclusionsA request for euthanasia appears to be a willful means to remove oneself from the impasse of an existence paralyzed by suffering. It creates a space for discussion, which promotes negotiation with patients on care practices and therapeutics, and strengthens patients' sense of autonomy. Investigating the relationship between the evolution of euthanasia requests within the palliative care setting could be beneficial. It is important to encourage health care professionals to adopt a readiness to listen by interacting with patients in a way that is not momentarily action-oriented but rather focused on proactive discussion.

Indexed as

euthanasiapalliative carerequest for euthanasiaterminal illness

Identifiers

PMID35036915
PMCPMC8755925

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.