ArticleHealth and technology2022
Informed or anxious: patient preferences for release of test results of increasing sensitivity on electronic patient portals.
Article in Health and technology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Patient Experiences With Online Laboratory Test Presentations From Access to Activation: Systematic Review.Journal of medical Internet research · 2026Pooled it
- Communicating blood test results in primary care: a mixed-methods systematic review.The British journal of general practice : the journal of the Royal College of General Practitioners · 2025Pooled it
- Patient-Reported Experiences With Viewing and Understanding Test Results in Patient Portals: Cross-Sectional Survey Analysis.Journal of medical Internet research · 2026Article
- Patient Perspectives on Electronic Communication of Cancer Diagnoses.JAMA network open · 2026Article
- Do you Really Want to Know-Patient and Physician Attitudes of Physicians and English-Proficient Asian Patients toward Direct Release of Radiology Reports in Singapore.Journal of imaging informatics in medicine · 2026Article
- Navigating the impact of the 21st-Century Cures Act Final Rule: A national cross-sectional survey of US genetic counselors.Journal of genetic counseling · 2025Article
- A targeted literature review on the impact of tailored interventions on patient outcomes in oncology.Oncogene · 2025Review
- Predictive testing for Huntington's disease in a digital age; patient power with potential pitfalls.European journal of human genetics : EJHG · 2025Article
- Timing and Method of Patient-Provider Communication for Abnormal Hepatocellular Carcinoma Screening Results in Cirrhosis.JCO clinical cancer informatics · 2025Article
- Repeated Access to Patient Portal While Awaiting Test Results and Patient-Initiated Messaging.JAMA network open · 2025Article
- Patient and Family Perceptions of Real-Time Access to Electronic Health Information: A Social Media Survey.Applied clinical informatics · 2025Article
- Comparative Evaluation of Large Language Models for Translating Radiology Reports into Hindi.The Indian journal of radiology & imaging · 2025Article
- Article
- Advancing cancer care through digital access in the USA: a state-of-the-art review of patient portals in oncology.BMJ oncology · 2025Review
- Article
- Immediate Patient Access to Test Results and the Impact on Advanced Practitioners.Journal of the advanced practitioner in oncology · 2024Article
- The Portal Is Always Open.Family medicine · 2024Article
- Perspectives from neuro-oncology providers on patient access to electronic records: a survey study.CNS oncology · 2024Article
- Information transparency with immediate release: Oncology clinician and patient perceptions.American journal of surgery · 2024Article
- Does Transparency Promote Engagement? Cancer Patients' Access of Electronic Medical Records Before and After the Information Blocking Rule.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Worldwide, governments and healthcare systems are moving towards increased transparency to improve care quality, increase patient engagement, and decrease costs. For example, the American 21st Century Cures Act Final Rule requires providers to grant patients access to their electronic medical record. Unfortunately, limited research guides release of test results to online patient portals, especially concerning emotionally sensitive information. To address this gap, we surveyed the largest patient sample published to date. This cross-sectional survey project was conducted by the Market Research & Insights and Office of Patient Experience departments at a large academic medical center. Data were analyzed in SPSS using descriptive statistics and Z-tests. Of 8030 respondents, 74% and 57% accepted first learning their results online for cholesterol and strep throat tests, respectively. Most prefer in-person appointments for more serious tests detecting cancer (54%) and fetal miscarriage (53%). Excluding sexually transmitted disease (STD) testing, there are no clinically significant differences in preference between respondents previously diagnosed with the condition in question and respondents without such experience. When weighing the possibility of a 3-week wait to hear from their provider, most patients want automatic release of cholesterol (94%), strep throat (90%), genetic (68%), and STD (60%) test results, but the majority say it is unacceptable to receive Alzheimer's (52%), fetal miscarriage (51%), and cancer (59%) test results this way. Electronic results release is acceptable for less serious tests, but not for more consequential tests. Providers should consider patient preferences when developing policies to increase healthcare transparency. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s12553-021-00628-5.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.