ArticleInternational journal of MS care
NARCOMS and Other Registries in Multiple Sclerosis: Issues and Insights.
Article in International journal of MS care. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT01018537 (NARCOMS Global Multiple Sclerosis Registry), which is not on this map. Cited by 22 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
NARCOMS Global Multiple Sclerosis Registry: A Long-Term Study to Facilitate Research in Multiple Sclerosis
Who cites it
22 citing papers in PubMed.
- Patient profiles and disease characteristics of the IMSRN cohort: a multicentre study (2021-2025).The Lancet regional health. Southeast Asia · 2026Article
- Disabilities and Health-Related Quality of Life in Multiple Sclerosis: Prospective 10-year Web-Based Study of a Population-Based Real-Life Cohort in the Netherlands.Degenerative neurological and neuromuscular disease · 2026Article
- Epidemiology and healthcare access in Brazilian multiple sclerosis patients: insights from the BRANDO database.Arquivos de neuro-psiquiatria · 2025Article
- The BRAINTEASER Datasets: Clinical, Wearable and Environmental Data for ALS & MS Progression Modeling.Scientific data · 2025Article
- Infection, Relapses, and Pseudo-Relapses in Individuals With Multiple Sclerosis.Neurology. Clinical practice · 2025Article
- Observational
- Post-acute sequela of COVID-19 infection in individuals with multiple sclerosis.Multiple sclerosis (Houndmills, Basingstoke, England) · 2025Article
- Access to Care and Health-Related Quality of Life in Multiple Sclerosis.Neurology. Clinical practice · 2024Article
- MyMS: An Interface for Patient-Reported Outcomes for Finnish Individuals With Multiple Sclerosis.International journal of MS care · 2024Article
- Imaging phenotypic differences in multiple sclerosis: at the crossroads of aging, sex, race, and ethnicity.Frontiers in global women's health · 2024Review
- Priority setting: women's health topics in multiple sclerosis.Frontiers in neurology · 2024Article
- Disease-modifying therapy initiation patterns in multiple sclerosis in three large MS populations.Therapeutic advances in neurological disorders · 2024Article
- So You Want to Build Your Disease's First Online Patient Registry: An Educational Guide for Patient Organizations Based on US and European Experience.The patient · 2023Article
- Data Resource Profile: The Multiple Sclerosis Documentation System 3D and AOK PLUS Linked Database (MSDS-AOK PLUS).Journal of clinical medicine · 2023Article
- Evaluating the impact of patient-reported outcome measures on depression and anxiety levels in people with multiple sclerosis: a study protocol for a randomized controlled trial.BMC neurology · 2023Article
- Attitudes of people with multiple sclerosis toward brain donation.Frontiers in neurology · 2023Article
- Disparities in Telehealth Care in Multiple Sclerosis.Neurology. Clinical practice · 2022Article
- Demyelinating diseases of the central nervous system registry for patients with traditional Chinese medicine: Rationale and design of a prospective, multicenter, observational study.Frontiers in pharmacology · 2022Article
- Men's health research priorities in men with multiple sclerosis.Multiple sclerosis journal - experimental, translational and clinicalArticle
- Attitudes toward coronavirus disease 2019 vaccination in people with multiple sclerosis.Multiple sclerosis journal - experimental, translational and clinicalArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Observational studies and registries can play a critical role in elucidating the natural and treated history of multiple sclerosis (MS) and identifying factors associated with outcomes such as disability and health-related quality of life. The North American Research Committee on Multiple Sclerosis (NARCOMS) Registry is one of multiple registries worldwide that focuses on people with MS, but one of the very few patient-driven MS registries. On the 25th anniversary of the first data collection for the NARCOMS Registry, we discuss the importance of disease registries in the MS field, describe key concepts related to registry design and management, and highlight findings from MS registries relevant to clinical care or health policy.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.