ArticleThe journals of gerontology. Series B, Psychological sciences and social sciences2022
Caring Together: Trajectories of Paid and Family Caregiving Support to Those Living in the Community With Dementia.
Article in The journals of gerontology. Series B, Psychological sciences and social sciences, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
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Who cites it
16 citing papers in PubMed.
- The Impact of the COVID-19 Pandemic on Homecare Use for Individuals with Physical Disabilities Stratified by Sex, Age, and Mental Health Condition: A Cohort Study Using Administrative Health Data.Home health care management & practice · 2026Article
- Differences in patient access to and utilization of caregiving services: a scoping review.BMC health services research · 2026Article
- Association of blood-based neurodegenerative biomarkers with cognitive functioning and dementia in India (LASI-DAD) and the United States (HRS).American journal of epidemiology · 2025Article
- Caregiving network precarity among community-living, dually enrolled persons with dementia.The Gerontologist · 2025Article
- Use of Paid Family Care in the Community: National Trends Among Older Adults With Functional Impairment, 2011-2022.Journal of the American Medical Directors Association · 2025Article
- Who chooses consumer-directed personal care? Characterizing users and switchers under New York Medicaid.Health affairs scholar · 2025Article
- Long-Term Care Services and Supports Needed for Successful Aging-in-Place: A Critical Review.Annual review of public health · 2025Review
- A look at caregivers for community-living persons with dementia: Implications for the GUIDE model.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- When Do Paid Caregivers Support the Health of Older Adults? Geriatrician Perspectives.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
- Changes in Long-term Services and Supports Among Adults With and Without Dementia During the First Year of the COVID-19 Pandemic.Innovation in aging · 2025Article
- Paid Caregiving in Dementia Care Over Time: Paid Caregiver, Family Caregiver, and Geriatrician Perspectives.The Gerontologist · 2024Article
- Caregiving for dementia: trends pre-post onset and predictive factors of family caregiving (2002-2018).Health affairs scholar · 2024Article
- Home Care Worker Continuity in Home-Based Long-Term Care: Associated Factors and Relationships With Client Health and Well-Being.Innovation in aging · 2024Article
- Paid Care for People with Functional Impairment and Serious Illness: Results from the Health and Retirement Study.Journal of general internal medicine · 2023Article
- Functional Decline Over Time and Change in Family and Other Unpaid Care Provided to Community-Dwelling Older Adults Living With and Without Dementia.The journals of gerontology. Series B, Psychological sciences and social sciences · 2023Article
- Late-Life Disability and Care: An Update From the National Health and Aging Trends Study at Its 10-Year Mark.The journals of gerontology. Series B, Psychological sciences and social sciences · 2022Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
objectivesPaid caregivers (e.g., home health aides) often work with family caregivers to support persons living with dementia at home. We identify (a) unique trajectories of paid and family caregiving support among persons living with dementia with high care needs and (b) factors associated with these trajectories.
methodsWe used group-based multiple trajectory modeling to identify distinct trajectories of paid and family caregiving hours among National Health and Aging Trends Study respondents with dementia who died or moved to a nursing home (n = 334, mean follow-up 5.5 years). We examined differences between trajectory groups and identified factors associated with group membership using generalized estimating equation modeling.
resultsA 3-group model best fit our data: (a) "low/stable care" (61.3% of respondents) with stable, low/no paid care and moderate family care, (b) "increasing paid care" with increasing, moderate paid and family care, and (c) "high family care" with increasing, high family care and stable, low paid care. While both the "increasing paid care" and "high family care" groups were more functionally impaired than the "low/stable care" group, the "high family care" group was also more likely to be non-White and experience multiple medical comorbidities, depression, and social isolation. DISCUSSION: Study findings highlight the importance of considering unique arrangements in dementia care. Receipt of paid care was not only determined by patient care needs. Creating equitable access to paid care may be a particularly important way to support both persons living with dementia and their family caregivers as care needs grow.
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