ArticleSociology of health & illness2022
What would it take to meaningfully attend to ethnicity and race in health research? Learning from a trial intervention development study.
Article in Sociology of health & illness, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
24 citing papers in PubMed, 58 citations in OpenAlex.
- Self-monitoring of blood pressure following a stroke or transient ischaemic attack (TASMIN5S): a randomised controlled trial.BMC cardiovascular disorders · 2024Trial
- "It's exactly what's needed": a call to action for breastmilk studies of vertical HIV transmission in high-income countries.Frontiers in reproductive health · 2026Article
- Balancing solidarity, normality and trust: reasons for (non-)participation in an injectable HIV antiretroviral therapy study in the United Kingdom.International journal for equity in health · 2025Article
- Nothing About Us Without Us: Consolidating Experiences of Maternity Care to Advance Equity.BJOG : an international journal of obstetrics and gynaecology · 2025Article
- Racial and Ethnic Representation in Studies of Psychological Trauma During Pregnancy in the United States.Journal of racial and ethnic health disparities · 2025Review
- Ethnic disparities and (non)adherence in standardized treatment: implications through an equity lens.BMC health services research · 2025Article
- Achieving equitable recruitment through inclusive protocol design: lessons learned from the ILANA study.Trials · 2025Article
- Article
- Data linkage multiplies research insights across diverse healthcare sectors.Communications medicine · 2025Review
- Hearing the Silence and Silenced: Co-Producing Research on Infant-Feeding Experiences and Practices With Black Women With HIV.Sociology of health & illness · 2025Article
- The patient-reported outcome measure for older people living with frailty receiving acute care (PROM-OPAC): field-testing and validation.Journal of patient-reported outcomes · 2024Article
- COVID-19 clinical trials: who is likely to participate and why?Journal of comparative effectiveness research · 2024Article
- Contextualising and challenging under-representation in research in light of Cultural Trauma: a qualitative focus group and interview study.Research involvement and engagement · 2024Article
- Article
- BIPOC experiences of (anti-)racist patient engagement in adolescent and young adult oncology research: an electronic Delphi study.Future oncology (London, England) · 2024Article
- Ensuring equitable access, engagement and ability of socially and ethnically diverse participants to benefit from health promotion programmes: a qualitative study with parent carers of disabled children.Frontiers in public health · 2024Article
- The ethical challenges of diversifying genomic data: A qualitative evidence synthesis.Cambridge prisms. Precision medicine · 2024Review
- Intersectionality as a theoretical framework for researching health inequities in chronic pain.British journal of pain · 2023Article
- Creating space for theory when codesigning healthcare interventions.Journal of evaluation in clinical practice · 2023Article
- Racial disparities in EEG research and their implications for our understanding of the maternal brain.Cognitive, affective & behavioral neuroscience · 2023Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 2 countries.
Funding
Abstract
The lack of ethnic diversity in health research participation is a multi-dimensional problem. Racism and intersectional disadvantage compel us to use racial and ethnic categories to explore health, but race theorists warn that these can be essentialising and pathologising. Yet, the alternative, the pursuit of colour-blindness, can render the impact of race and ethnicity on health invisible. This paper describes the attempt to recruit an ethnically diverse sample to inform the development of an intervention for stroke patients. The study revealed deep uncertainties and tensions, which we use to re-examine our own positionalities and perspectives. We focus on the experiences of researchers and participants to show how 'usual' research practices are unwittingly exclusionary and promote 'methodological whiteness' (The British Journal of Sociology, 2017, 68, S214). Calls for greater diversity in research are frequently made, yet health research remains tainted by the use of problematic epistemological starting points, rendering participation by minoritised people uneasy. Medical sociologists, especially those engaged in clinical trials, have a vital role to play in recalibrating health research to attend to ethnicity and race. This requires us to reflect on our practices, to recognise where we are complicit in replicating social inequalities and to actively engage with communities to produce more inclusive research.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.