SynthesisJournal of the American Medical Informatics Association : JAMIA2022
Barriers and facilitators for the implementation of health condition and outcome registry systems: a systematic literature review.
Synthesis in Journal of the American Medical Informatics Association : JAMIA, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed, 22 citations in OpenAlex.
- Systematic review of cardiovascular care delivery across health systems in the Asia-Pacific: a regional roadmap for strengthening cardiovascular care.The Lancet regional health. Western Pacific · 2026Article
- A method to enable clinical and translational research teams with custom real-world data from electronic health record systems.Journal of clinical and translational science · 2026Article
- Quality of Life and Mental Health Problems in Pediatric Cardiac Arrest Survivors.Children (Basel, Switzerland) · 2025Article
- Calibration of transition probabilities to model survival of adjuvant trastuzumab for early breast cancer in Indonesia.International journal of technology assessment in health care · 2025Article
- A minimum dataset for destination therapy with left ventricular assist device: the evidence that matters to decision makers.International journal of technology assessment in health care · 2025Article
- Complex inner and outer setting interactions determine feasibility and readiness of developing primary care registries in small island developing states: sequential mixed methods study.Frontiers in health services · 2025Article
- Implementation of thyroid eye disease registry in Iran: rationale and research protocol.Orphanet journal of rare diseases · 2024Article
- Barriers and facilitators of using health information technologies by women: a scoping review.BMC medical informatics and decision making · 2023Article
- Online Health Communities: an alternative feasible data registry tool for developing countries.Health research policy and systems · 2023Article
- Global Neurotrauma Surveillance: Are National Databases Overrated? Comment on "Neurotrauma Surveillance in National Registries of Low- and Middle-Income Countries: A Scoping Review and Comparative Analysis of Data Dictionaries".International journal of health policy and management · 2023Article
- Development and pilot implementation of Iranian Hemolytic Uremic Syndrome Registry.Orphanet journal of rare diseases · 2022Article
- Barriers and facilitators for disease registry systems: a mixed-method study.BMC medical informatics and decision making · 2022Article
- Implementation and adaptation of the Society of Thoracic Surgeons´ standardized nomenclature for congenital heart surgery in a Peruvian hospital.Archivos peruanos de cardiologia y cirugia cardiovascularArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveHealth condition and outcome registry systems (registries) are used to collect data related to diseases and other health-related outcomes in specific populations. The implementation of these programs encounters various barriers and facilitators. Therefore, the present review aimed to identify and classify these barriers and facilitators. MATERIALS AND
methodsSome databases, including PubMed, Embase, ISI Web of Sciences, Cochrane Library, Scopus, Ovid, ProQuest, and Google Scholar, were searched using related keywords. Thereafter, based on the inclusion and exclusion criteria, the required data were collected using a data extraction form and then analyzed by the content analysis method. The obtained data were analyzed separately for research and review studies, and the developed and developing countries were compared.
resultsForty-five studies were reviewed and 175 unique codes were identified, among which 93 barriers and 82 facilitators were identified. Afterward, these factors were classified into the following 7 categories: barriers/facilitators to management and data management, poor/improved collaborations, technological constraints/appropriateness, barriers/facilitators to legal and regulatory factors, considerations/facilitators related to diseases, and poor/improved patients' participation. Although many of these factors have been more cited in the literature related to the developing countries, they were found to be common in both developed and developing countries.
conclusionLack of budget, poor performance of managers, low data quality, and low stakeholders' interest/motivation on one hand, and financing, providing adequate training, ensuring data quality, and appropriate data collection on the other hand were found as the most common barriers or facilitators for the success of the registry implementation.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.