ArticleBMJ open2022
Characterising common challenges faced by parental caregivers of children with type 1 diabetes mellitus in mainland China: a qualitative study.
Article in BMJ open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 3 of them syntheses that pooled it.
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Who cites it
18 citing papers in PubMed, 3 syntheses or guidelines pooled it, 32 citations in OpenAlex.
- Parental care experience of children with type 1 diabetes: a qualitative meta-synthesis.Revista da Escola de Enfermagem da U S P · 2024Pooled it
- The prevalence of depression among parents of children/adolescents with type 1 diabetes: A systematic review and meta-analysis.Frontiers in endocrinology · 2023Pooled it
- Interventions and strategies to improve social support for caregivers of children with chronic diseases: An umbrella review.Frontiers in psychiatry · 2022Pooled it
- 'Dancing with diabetes': Family coping strategies to promote psychological and behavioural adaptation in older children and adolescents with type 1 diabetes-A qualitative study.Diabetic medicine : a journal of the British Diabetic Association · 2026Article
- Differences and Similarities Between Experiences of Mothers and Fathers of Children With Type 1 Diabetes Mellitus: A Qualitative Study.Nursing open · 2026Article
- Emotion Regulation, Fear of Hypoglycemia, and Diabetes Distress in Parents of Children with Type 1 Diabetes.Behavioral sciences (Basel, Switzerland) · 2026Article
- Parental quality of life and its influence on health-related quality of life in children with type 1 diabetes: a cross-sectional dyadic study in a multi-ethnic cohort.BMC endocrine disorders · 2026Article
- Exploring the experiences of mothers of children with type 1 diabetes in Northern Alberta: a qualitative descriptive study.BMC public health · 2025Article
- Article
- Caring Under Constraints: A Qualitative Study of Parental Needs in Pediatric Diabetes in Zabol.Pediatric diabetes · 2025Article
- Parents of Children With Type 1 Diabetes Experienced More Parent-Specific Distress Than Parents of Adolescents in China.Pediatric diabetes · 2025Article
- Family members' knowledge, attitudes, practices, and caregiver burden in managing the health of patients with severe burn injuries.Frontiers in public health · 2025Article
- Lived Experiences of Parents of Children with Celiac Disease: A Descriptive Qualitative Study.Pediatric gastroenterology, hepatology & nutrition · 2024Article
- Caregiver burden among parents of children with type 1 diabetes: A qualitative scoping review.Heliyon · 2024Article
- Objective Burden and Emotional Distress of Parents of Children with Type 1 Diabetes.Hormone research in paediatrics · 2024Observational
- Assessing the Feasibility and Acceptability of a Virtual Food Skills and Food Sustainability Program Designed for Children Living With Type 1 Diabetes.Pediatric diabetes · 2024Article
- Meanings attributed to health-related quality of life by caregivers of adolescents with diabetes.Revista brasileira de enfermagem · 2024Article
- Burden of care and a sense of loneliness in caregivers of children with type 1 diabetes. a cross-sectional study.BioPsychoSocial medicine · 2023Article
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Authors and funding
3 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesThe mental state of parental caregivers affects outcomes in children with type 1 diabetes mellitus (T1DM). This study aimed to qualitatively examine perception of common challenges among parental caregivers of children with T1DM.
settingSemistructured interviews 45-60 min long were conducted with parental caregivers of children with T1DM. Interview recordings were transcribed and coded in NVivo V.11.0 to observe emergent themes.
participantsEligible T1DM caregiving parents (parent(s) and/or legal guardian(s)) were identified from caregivers attending visits with children hospitalised or assessed in the Pediatric Neuroendocrinology Department of Shengjing Hospital, China Medical University in Shenyang from January 2018 to June 2019. PRIMARY AND SECONDARY OUTCOME MEASURES: Not applicable.
resultsA total of 20 T1DM caregiving parents were interviewed, aged 30-53 years, including 7 fathers and 13 mothers, with their children whose mean age was 10.6±2.45 years. Content analysis revealed 5 major themes with 13 subthemes, including persistent psychological stress (catastrophic emotions, emotional distress and altered self-efficacy), family function change (altered family life patterns and changes in parental role/function), challenges in daily management (technical challenges, emotional regulation, parent-child conflict and transition of care autonomy from parent to child), financial burden (cost burden of treatment and altered family economics), and lack of social support (social activity limitations and insufficient support system).
conclusionsThe period of emotional disturbance during initial diagnosis, psychological stresses of long-term caregiving, and conflict emerging from transition from parental to child responsibility all can cause psychological response detrimental to parental caregivers and children with T1DM. This work provides compelling evidence for the role of assessment and intervention in parental caregivers' psychological and emotional well-being in diabetes care, as well as for the necessity of improved social and school support for children with T1DM in China.
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