Evidence map›Paper›PMID 35016665›Full record

ArticleBMC palliative care2022

Discussing patient preferences for levels of life-sustaining treatment: development and pilot testing of a Danish POLST form.

Lone Doris Tuesen, Hans-Henrik Bülow, Anne Sophie Ågård, Sverre Mainz Strøm, Erik Fromme, Hanne Irene Jensen

Open access · goldAbstract read
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Article in BMC palliative care, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
1.4field-weighted citation impact, top 20% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 7 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 4 institutions in 2 countries.

Lone Doris TuesenDepartment of Anaesthesiology and Intensive Care, Vejle and Middelfart Hospitals, University Hospital of Southern Denmark, Beriderbakken 4, DK-7100, Vejle, Denmark. lone.tuesen@gmail.com.ORCID http://orcid.org/0000-0001-8060-0265
Hans-Henrik BülowDepartment of Anaesthesiology and Intensive Care, University Hospital Holbaek, Holbaek, Denmark.
Anne Sophie ÅgårdDepartment of Intensive Care, Aarhus University Hospital, Palle Juul-Jensens Boulevard 100, DK-8200, Aarhus N, Denmark.
Sverre Mainz StrømMedical Center, Aeblehaven 1, DK-5580, Norre Aaby, Denmark.
Erik FrommeDana-Farber Cancer Institute, 450 Brookline Ave, Boston, MA, 02215, USA.
Hanne Irene JensenDepartment of Anaesthesiology and Intensive Care, Vejle and Middelfart Hospitals, University Hospital of Southern Denmark, Beriderbakken 4, DK-7100, Vejle, Denmark.
University of Southern Denmark · DKAarhus University · DKDana-Farber Cancer Institute · USHolbæk Sygehus · DK

Funding

Novo Nordisk Fonden NNF16OC0023610The Development and Research Fund, Danish Regions and the Health Cartel 15.2.2017The Region of Southern Denmark J.nr.: 17/15128
6 · The paper itself

Abstract

backgroundMedically frail and/or chronically ill patients are often admitted to Danish hospitals without documentation of patient preferences. This may lead to inappropriate care. Modelled on the American Physician Orders for Life-Sustaining Treatment (POLST) form, the purpose of the study was to develop and pilot test a Danish POLST form to ensure that patients' preferences for levels of life-sustaining treatment are known and documented.

methodsThe study was a mixed methods study. In the initial phase, a Danish POLST form was developed on the basis of literature and recommendations from the National POLST organisation in the US. A pilot test of the Danish POLST form was conducted in hospital wards, general practitioners' clinics, and nursing homes. Patients were eligible for inclusion if death was assessed as likely within 12 months. The patient and his/her physician engaged in a conversation where patient values, beliefs, goals for care, diagnosis, prognosis, and treatment alternatives were discussed. The POLST form was completed based on the patient's values and preferences. Family members and/or nursing staff could participate. Participants' assessments of the POLST form were evaluated using questionnaires, and in-depth interviews were conducted to explore experiences with the POLST form and the conversation.

resultsIn total, 25 patients participated, 45 questionnaires were completed and 14 interviews were conducted. Most participants found the POLST form readable and understandable, and 93% found the POLST form usable to a high or very high degree for discussing preferences regarding life-sustaining treatment. Three themes emerged from the interviews: (a) an understandable document is essential for the conversation, (b) handling and discussing wishes, and (c) significance for the future.

conclusionThe Danish version of the POLST form is assessed by patients, families, physicians, and nurses as a useful model for obtaining and documenting Danish patients' preferences for life-sustaining treatment. However, this needs to be confirmed in a larger-scale study.

Indexed as

Advance Care PlanningTerminal CareDenmarkFemaleHumansMaleNursing HomesPatient PreferenceResuscitation OrdersAdvance care planningEnd-of-lifeShared decision-making

Identifiers

PMID35016665
PMCPMC8749111
OpenAlexW4205620745

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.