Evidence map›Paper›PMID 35016640›Full record

ArticleBMC geriatrics2022

What constitutes 'good' home care for people with dementia? An investigation of the views of home care service recipients and providers.

Anita M Y Goh, Meg Polacsek, Sue Malta, Colleen Doyle, Brendan Hallam, Luke Gahan, Lee Fay Low, Claudia Cooper, Gill Livingston, Anita Panayiotou and 11 more

Open access · goldAbstract read
In one paragraph

Article in BMC geriatrics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.

0numbers the graph read from it
0cells of the map it votes in
18citing papers in PubMed
6.4field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

18 citing papers in PubMed, 23 citations in OpenAlex.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Review
  6. The dementia care workforce: Essential to care but large research gaps exist.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025
    Review
  7. Home Care Workers Providing Person-Centered Care to People With Dementia.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2024
    Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. Review
  17. Article
  18. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

21 authors at 8 institutions in 3 countries.

Anita M Y GohNational Ageing Research Institute, Parkville, VIC, Australia. a.goh@nari.edu.au.
Meg PolacsekBenetas, Melbourne, VIC, Australia.
Sue MaltaThe University of Melbourne, Parkville, VIC, Australia.
Colleen DoyleNational Ageing Research Institute, Parkville, VIC, Australia.
Brendan HallamInstitute of Epidemiology & Health Care, University College London, London, UK.
Luke GahanNational Ageing Research Institute, Parkville, VIC, Australia.
Lee Fay LowUniversity of Sydney, Sydney, NSW, Australia.
Claudia CooperDivision of Psychiatry, University College London, London, United Kingdom.
Gill LivingstonDivision of Psychiatry, University College London, London, United Kingdom.
Anita PanayiotouNational Ageing Research Institute, Parkville, VIC, Australia.
Samantha M LoiThe University of Melbourne, Parkville, VIC, Australia.
Maho OmoriMonash University, Clayton, VIC, Australia.
Steven SavvasNational Ageing Research Institute, Parkville, VIC, Australia.
Jason Burtondementia360, Perth, Western Australia, Australia.
David AmesNational Ageing Research Institute, Parkville, VIC, Australia.
Samuel C SchererThe University of Melbourne, Parkville, VIC, Australia.
Nadia ChauNational Ageing Research Institute, Parkville, VIC, Australia.
Stefanie RobertsThe University of Melbourne, Parkville, VIC, Australia.
Margaret WinboltLaTrobe University, Melbourne, VIC, Australia.
Frances BatchelorNational Ageing Research Institute, Parkville, VIC, Australia.
Briony DowNational Ageing Research Institute, Parkville, VIC, Australia.
National Ageing Research Institute · AUThe University of Melbourne · AUUniversity College London · GBLa Trobe University · AUThe Royal Melbourne Hospital · AUMonash University · AUThe University of Sydney · AUVicRoads · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundOur objective was to explore what people receiving and providing care consider to be 'good' in-home care for people living with dementia.

methodsWe conducted 36 in-depth interviews and two focus groups with key stakeholders in Australia in the first quarter of 2018. Participants included those receiving care (4 people living with dementia, 15 family carers) or providing care (9 case managers, 5 service managers, 10 home care workers). Qualitative thematic analysis was guided by Braun and Clarke's six-step approach.

resultsConsensus was reached across all groups on five themes considered as important for good in-home dementia care: 1) Home care workers' understanding of dementia and its impact; 2) Home care workers' demonstrating person-centred care and empathy in their care relationship with their client; 3) Good relationships and communication between care worker, person with dementia and family carers; 4) Home care workers' knowing positive practical strategies for changed behaviours; 5) Effective workplace policies and workforce culture. The results contributed to the co-design of a dementia specific training program for home care workers.

conclusionsIt is crucial to consider the views and opinions of each stakeholder group involved in providing/receiving dementia care from home care workers, to inform workforce training, education program design and service design. Results can be used to inform and empower home care providers, policy, and related decision makers to guide the delivery of improved home care services.

trial registrationACTRN 12619000251123 .

Indexed as

DementiaHome Care ServicesHome Health AidesCaregiversFocus GroupsHumansCaregiversCodesignDementiaIn-home careStakeholder

Identifiers

PMID35016640
PMCPMC8751242
OpenAlexW4205237088

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.