Evidence map›Paper›PMID 35015585›Full record

ArticleJournal of intellectual disabilities : JOID2023

Advancing inclusive research with people with profound and multiple learning disabilities through a sensory-dialogical approach.

Anita Gjermestad, Synne N Skarsaune, Ruth L Bartlett

Abstract read
In one paragraph

Article in Journal of intellectual disabilities : JOID, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Empowerment of Youth With Intellectual Disabilities Through Inclusive Research in Africa.Journal of applied research in intellectual disabilities : JARID · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Anita GjermestadFaculty of Health, 217199Sandnes. VID Specialized University, Sandnes, Norway.ORCID 0000-0001-8686-9265
Synne N SkarsauneFaculty of Health, 217199Sandnes. VID Specialized University, Sandnes, Norway.
Ruth L BartlettFaculty of Health, 87368Oslo. VID Specialized University, Oslo, Norway.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

People with profound and multiple learning disabilities are often excluded from the processes of knowledge production and face barriers to inclusion in research due to cognitive and communicative challenges. Inclusive research-even when intending to be inclusive-tends to operate within criteria that exclude people with profound and multiple learning disabilities. The aim of this article is to provide a state-of-the-art review of the topic of inclusive research involving people with profound disabilities and thereby challenge traditional assumptions of inclusive research. The review presents themes that will inform a discussion on how to challenge the criteria in ways that make it possible to understand inclusive research for people who communicate in unconventional ways. We argue that a fruitful way of rethinking inclusive research is by applying a sensory-dialogical approach that privileges the dialogical and sensory foundations of the research. We suggest this might be a way to understand inclusive research that regards the person's communicative and cognitive distinctiveness.

Indexed as

Intellectual DisabilityLearning DisabilitiesPersons with DisabilitiesCommunity-Based Participatory ResearchHumansInclusive researchmethodprofound intellectual disabilitysensory-dialogical

Identifiers

PMID35015585
PMCPMC9941796

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.