ArticleHealth expectations : an international journal of public participation in health care and health policy2022
The chronic disease Self-Management Programme: A phenomenological study for empowering vulnerable patients with chronic diseases included in the EFFICHRONIC project.
Article in Health expectations : an international journal of public participation in health care and health policy, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
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Who cites it
13 citing papers in PubMed.
- "Understanding Chronic Kidney Disease Self-Management Barriers and Facilitators: A Consumer-Led Qualitative Study".Journal of renal care · 2026Article
- Association between team functioning and self-efficacy and quality of life for primary care patients in British Columbia, Nova Scotia, and Ontario.Primary health care research & development · 2026Article
- A combined diving and mindfulness program as a catalyst for behavioural change in adults with obesity: a qualitative study.International journal of qualitative studies on health and well-being · 2025Article
- Quality of Life and Experience of Patients with Heart Failure with Preserved Ejection Fraction and Their Caregivers.Journal of clinical medicine · 2025Article
- The impact of perceived social support on chronic disease self-management among older inpatients in China: The chain-mediating roles of psychological resilience and health empowerment.BMC geriatrics · 2025Article
- Obstacles and Opportunities for Albuminuria Testing On the Basis of the Perspective of Primary Care: A Qualitative Study.Clinical journal of the American Society of Nephrology : CJASN · 2025Article
- Effects of the Stanford Chronic Conditions Model on Behavioral and Clinical Indicators in Saudi Arabia: A Prospective Quasi-Experimental Study.Journal of multidisciplinary healthcare · 2025Article
- Chronic illness experience in the context of resource-limited settings: a concept analysis.International journal of qualitative studies on health and well-being · 2024Review
- Impact of Chronic Disease Self-Management Program on the Self-Perceived Health of People in Areas of Social Vulnerability in Asturias, Spain.Healthcare (Basel, Switzerland) · 2024Article
- General practitioners' representation of early-stage CKD is a barrier to adequate management and patient empowerment: a phenomenological study.Journal of nephrology · 2024Article
- Meeting the needs of pregnant women in socially vulnerable situations: A phenomenological qualitative study.Heliyon · 2024Article
- Evaluating the Effectiveness of a Self-Management Program on Patients Living with Chronic Diseases.Risk management and healthcare policy · 2024Article
- The chronic disease Self-Management Programme: A phenomenological study for empowering vulnerable patients with chronic diseases included in the EFFICHRONIC project.Health expectations : an international journal of public participation in health care and health policy · 2022Article
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12 authors.
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Abstract
introductionThe Chronic Disease Self-Management Programme (CDSMP) has resulted in improved health outcomes for patients. However, research has focused mainly on those with chronic conditions and has not extensively explored prevention programmes targeting individuals with specific vulnerability profiles.
aimThis study aimed to understand the effects of the CDSMP on the lived experience of vulnerable patients included in the EFFICHRONIC project in France, based on their needs and expectations before and after participation.
methodsWe conducted a qualitative phenomenological semio-pragmatic study based on 37 in-depth interviews with 20 patients (20 before/17 after CDSMP).
resultsBy transforming existential dimensions (identity, relationship with others and bodily experience), chronic illness generates new needs in the vulnerable person. By resonating with the expectations and needs of participants, the CDSMP induces motivation and a sense of belonging to a community of peers. It has enabled the participants to become actors of their own health until empowerment. Although some limitations are reported, the programme has awakened a desire in the participants to take better care of their health and to develop personal skills with, for some, a desire to become involved in health education.
conclusionOur phenomenological approach highlighted the resonance between the programme (its design and implementation) and the lived experience of patients, as an effective element of empowerment. This necessitates training the facilitators to elicit the lived experience of patients. Furthermore, as a patient-centred approach is required, the facilitators need to learn how to adapt the design of the programme to the singularity of the patient. PATIENT OR PUBLIC CONTRIBUTION: Patients provided the data that were collected through in-depth interviews, and their experiences before and after the programme were analysed.
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