Evidence map›Paper›PMID 35010379›Full record

ArticleInternational journal of environmental research and public health2021

Attitudes toward Pursuing Genetic Testing among Parents of Children with Autism Spectrum Disorder in Taiwan: A Qualitative Investigation.

Zihan Zhang, Justin Kramer, Haocen Wang, Wei-Ju Chen, Tse-Yang Huang, Yann-Jang Chen, Tung-Sung Tseng, Lei-Shih Chen

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Article in International journal of environmental research and public health, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 1 synthesis or guideline pooled it.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Zihan ZhangDepartment of Health and Kinesiology, Texas A&M University, College Station, TX 77843, USA.
Justin KramerDepartment of Health and Kinesiology, Texas A&M University, College Station, TX 77843, USA.ORCID 0000-0003-3791-1548
Haocen WangDepartment of Health and Kinesiology, Texas A&M University, College Station, TX 77843, USA.
Wei-Ju ChenDepartment of Psychology, The University of Texas Permian Basin, Odessa, TX 79762, USA.ORCID 0000-0002-5424-7047
Tse-Yang HuangDepartment of Special Education, National Tsing Hua University, Hsinchu 30013, Taiwan.
Yann-Jang ChenDepartment of Life Sciences and Institute of Genome Sciences, National Yang Ming University, Taipei 11211, Taiwan.
Tung-Sung TsengBehavioral and Community Health Sciences Program, School of Public Health, Louisiana State University Health Sciences Center, New Orleans, LA 70112, USA.ORCID 0000-0001-6266-9891
Lei-Shih ChenDepartment of Health and Kinesiology, Texas A&M University, College Station, TX 77843, USA.ORCID 0000-0001-5320-6350

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe diagnosis of autism spectrum disorder (ASD) cases is increasing in Taiwan. Genetic testing for children with ASD offers several potential benefits and is available with out-of-pocket expenses. Parents play a pivotal role in having their children with ASD tested; therefore, understanding their perceptions of, and perceived barriers to genetic testing is vital.

methodsSemi-structured interviews were conducted with 39 parents of children with ASD in Taiwan. Interviews were recorded and transcribed verbatim. NVivo 12 software (QSR International, Doncaster, Australia) was used to facilitate an inductive coding methodology.

resultsThe majority of participants (74.4%) supported ASD genetic testing for their children with ASD, citing reasons such as clarifying ASD etiology, well-informed family planning, contributing to ASD research, and early ASD detection and intervention. Others indicated that they were either against such testing (17.9%), or unsure (7.7%) about whether to take their children with ASD for genetic testing. Those who were opposed reported that their main concerns related to perceptions of no value of genetic testing, potential for family conflict, and financial difficulties.

conclusionsMost of the parents of children with ASD that we interviewed expressed favorable views of ASD genetic testing. There exists a need to increase parental access to education and counseling, and to include testing coverage in Taiwanese national health insurance.

Indexed as

Autism Spectrum DisorderAsian PeopleChildGenetic TestingHealth Knowledge, Attitudes, PracticeHumansTaiwanautism spectrum disorderknowledgeparentsperceptions

Identifiers

PMID35010379
PMCPMC8750339

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.