Evidence map›Paper›PMID 35006082›Full record

ArticleJMIR research protocols2022

Coproducing Knowledge of the Implementation of Complex Digital Health Interventions for Adults with Acquired Brain Injury and their Communication Partners: Protocol for a Mixed Methods Study.

Melissa Miao, Emma Power, Rachael Rietdijk, Deborah Debono, Melissa Brunner, Alexander Salomon, Ben Mcculloch, Meg Rebecca Wright, Monica Welsh, Bastian Tremblay and 5 more

Open access · goldAbstract read
In one paragraph

Article in JMIR research protocols, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
2.5field-weighted citation impact, top 11% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it, 10 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors at 3 institutions in 2 countries.

Melissa MiaoUniversity of Technology Sydney, Sydney, Australia.ORCID https://orcid.org/0000-0002-4113-0149
Emma PowerUniversity of Technology Sydney, Sydney, Australia.ORCID https://orcid.org/0000-0002-2638-0406
Rachael RietdijkUniversity of Sydney, Sydney, Australia.ORCID https://orcid.org/0000-0003-4343-4039
Deborah DebonoUniversity of Technology Sydney, Sydney, Australia.ORCID https://orcid.org/0000-0003-2095-156X
Melissa BrunnerUniversity of Sydney, Sydney, Australia.ORCID https://orcid.org/0000-0001-6823-5189
Alexander SalomonSee Authors' Contributions, Australia.ORCID https://orcid.org/0000-0002-5110-725X
Ben MccullochSee Authors' Contributions, Australia.ORCID https://orcid.org/0000-0003-1626-7538
Meg Rebecca WrightSee Authors' Contributions, Australia.ORCID https://orcid.org/0000-0002-4581-7087
Monica WelshSee Authors' Contributions, Australia.ORCID https://orcid.org/0000-0003-2097-3638
Bastian TremblaySee Authors' Contributions, Australia.ORCID https://orcid.org/0000-0003-4404-6118
Caleb RixonSee Authors' Contributions, Australia.ORCID https://orcid.org/0000-0003-0265-211X
Liz WilliamsSee Authors' Contributions, Australia.ORCID https://orcid.org/0000-0003-2540-0898
Rosemary MorrowSee Authors' Contributions, Australia.ORCID https://orcid.org/0000-0002-8622-9230
Jean-Christophe EvainSee Authors' Contributions, Australia.ORCID https://orcid.org/0000-0002-0196-8203
Leanne TogherUniversity of Sydney, Sydney, Australia.ORCID https://orcid.org/0000-0002-4518-6748
Hydrosolutions (Switzerland) · CHThe University of Sydney · AUUniversity of Technology Sydney · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe Social Brain Toolkit, conceived and developed in partnership with stakeholders, is a novel suite of web-based communication interventions for people with brain injury and their communication partners. To support effective implementation, the developers of the Social Brain Toolkit have collaborated with people with brain injury, communication partners, clinicians, and individuals with digital health implementation experience to coproduce new implementation knowledge. In recognition of the equal value of experiential and academic knowledge, both types of knowledge are included in this study protocol, with input from stakeholder coauthors.

objectiveThis study aims to collaborate with stakeholders to prioritize theoretically based implementation targets for the Social Brain Toolkit, understand the nature of these priorities, and develop targeted implementation strategies to address these priorities, in order to support the Social Brain Toolkit's implementation.

methodsTheoretically underpinned by the Nonadoption, Abandonment, Scale-up, Spread, and Sustainability (NASSS) framework of digital health implementation, a maximum variation sample (N=35) of stakeholders coproduced knowledge of the implementation of the Social Brain Toolkit. People with brain injury (n=10), communication partners (n=11), and clinicians (n=5) participated in an initial web-based prioritization survey based on the NASSS framework. Survey completion was facilitated by plain English explanations and accessible captioned videos developed through 3 rounds of piloting. A speech-language pathologist also assisted stakeholders with brain injury to participate in the survey via video teleconference. Participants subsequently elaborated on their identified priorities via 7 web-based focus groups, in which researchers and stakeholders exchanged stakeholder perspectives and research evidence from a concurrent systematic review. Stakeholders were supported to engage in focus groups through the use of visual supports and plain English explanations. Additionally, individuals with experience in digital health implementation (n=9) responded to the prioritization survey questions via individual interview. The results will be deductively analyzed in relation to the NASSS framework in a coauthorship process with people with brain injury, communication partners, and clinicians.

resultsEthical approval was received from the University of Technology Sydney Health and Medical Research Ethics Committee (ETH20-5466) on December 15, 2020. Data were collected from April 13 to November 18, 2021. Data analysis is currently underway, with results expected for publication in mid-2022.

conclusionsIn this study, researchers supported individuals with living experience of acquired brain injury, of communicating with or clinically supporting someone post injury, and of digital health implementation, to directly access and leverage the latest implementation research evidence and theory. With this support, stakeholders were able to prioritize implementation research targets, develop targeted implementation solutions, and coauthor and publish new implementation findings. The results will be used to optimize the implementation of 3 real-world, evidence-based interventions and thus improve the outcomes of people with brain injury and their communication partners. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/35080.

Indexed as

acquired brain injurybrain injurycaregiversdelivery of health careimplementation scienceinternet interventionsmobile phonepriority settingpublic involvementspeech-language pathology

Identifiers

PMID35006082
PMCPMC8787662
OpenAlexW4205777846

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.