ArticleKidney international reports2022
A Focus Group Study of Self-Management in Patients With Glomerular Disease.
Article in Kidney international reports, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
4 citing papers in PubMed, 6 citations in OpenAlex.
- Barriers and facilitators to self-management in chronic kidney disease patients undergoing hemodialysis: Insights from a qualitative study.Journal of education and health promotion · 2026Article
- Designing qualitative research with value in the clinical and epidemiological context: what, why and how.Clinical kidney journal · 2025Article
- Living with Atypical Hemolytic Uremic Syndrome in the Netherlands: Patient and Family Perspective.Kidney international reports · 2024Article
- Qualitative Analyses to Amplify Patient and Care Partner Needs for Self-Management in Glomerular Disease.Kidney international reports · 2022Article
Corrections and comments
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Authors and funding
45 authors at 20 institutions in 12 countries.
Funding
Abstract
introductionPatients with glomerular disease experience symptoms that impair their physical and mental health while managing their treatments, diet, appointments and monitoring general and specific indicators of health and their illness. We sought to describe the perspectives of patients and their care partners on self-management in glomerular disease.
methodsWe conducted 16 focus groups involving adult patients with glomerular disease (
resultsWe identified the following 4 themes: empowered in autonomy (gaining confidence through understanding, taking ownership of disease and treatment, learning a positive health approach); overwhelmed by compounding treatment burdens (financially undermined and depleted, demoralized by side effects and harms, frustrated by fragmented and inflexible care, fear of possible drug harms); striving for stability and normalcy (making personal sacrifices, maximizing life participation, attentiveness to bodily signs, avoiding precarious health states, integrating medicines into routines); and necessity of health-sustaining relationships (buoyed by social support, fulfilling meaningful responsibilities, sharing and normalizing experiences, seeking a trusting and respectful alliance).
conclusionPatients with glomerular disease and their care partners value their capacity for autonomy and disease ownership, stability of their health, and relationships that support self-management. Strategies directed at strengthening these factors may increase self-efficacy and improve the care and outcomes for patients with glomerular disease.
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Registered trials
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