Evidence map›Paper›PMID 34998436›Full record

Trial reportTrials2022

Sharing research results with Latina breast cancer survivors who participated in a community-engaged behavioral RCT study: a descriptive cross-sectional survey study.

Jackie Bonilla, Alia Alhomsi, Jasmine Santoyo-Olsson, Anita L Stewart, Carmen Ortiz, Cathy Samayoa, Alma Torres-Nguyen, Helen Palomino, La Verne Coleman, Aday Urias and 4 more

2 registry-linked trialsOpen access · goldAbstract readRandomized Controlled Trial
PubMed Full text at PMC Publisher
In one paragraph

Trial report in Trials, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 4 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed, 1 pooled it
1.2field-weighted citation impact, top 23% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT01383174 nacompletednot on this map

Nuevo Amanecer: Promoting the Psychosocial Health of Latinas

TypeinterventionalSponsorUniversity of California, San FranciscoRan2011 to 2014Enrolled151ConditionsBreast Neoplasms, Psychology, SocialArmsPeer Support Program
NCT02931552 nacompletednot on this map

Translating a Stress Management Program for Latinas

TypeinterventionalSponsorUniversity of California, San FranciscoRan2016 to 2019Enrolled153ConditionsBreast Neoplasms, Psychology, SocialArmsNuevo Amancer-II Stress Management Program
3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 1 synthesis or guideline pooled it, 6 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 8 institutions in 1 country.

Jackie BonillaNational Institute on Minority Health and Health Disparities, National Institutes of Health, 9000 Rockville Pike, Building 3, Floor 5, Room E08, Bethesda, MD, 20892, USA.
Alia AlhomsiNational Institute on Minority Health and Health Disparities, National Institutes of Health, 9000 Rockville Pike, Building 3, Floor 5, Room E08, Bethesda, MD, 20892, USA.
Jasmine Santoyo-OlssonDivision of General Internal Medicine, Department of Medicine, University of California San Francisco (UCSF), 3333 California St., Suite 335, San Francisco, CA, 94143-0856, USA.
Anita L StewartUniversity of California San Francisco, Institute for Health & Aging, Center for Aging in Diverse Communities, 490 Illinois Street, 12232, San Francisco, CA, 94158, USA.
Carmen OrtizCírculo de Vida Cancer Support and Resource Center, 2601 Mission Street, Suite 702, San Francisco, CA, 94110, USA.
Cathy SamayoaHealth Equity Research Lab, Department of Biology, San Francisco State University, 1600 Holloway Ave, San Francisco, CA, 94132, USA.
Alma Torres-NguyenKaweah Delta Health Care District, 400 W. Mineral King, Visalia, CA, 93291, USA.
Helen PalominoCancer Resource Center of the Desert, 444 So. 8th St, Suite B-3, El Centro, CA, 92243, USA.
La Verne ColemanWomenCARE/Entre Nosotras, Family Service Agency of the Central Coast, 2901 Park Avenue, Suite A1, Soquel, CA, 95073, USA.
Aday UriasCancer Resource Center of the Desert, 444 So. 8th St, Suite B-3, El Centro, CA, 92243, USA.
Nayeli GonzalezCancer Resource Center of the Desert, 444 So. 8th St, Suite B-3, El Centro, CA, 92243, USA.
Silvia Araceli CervantesKaweah Delta Health Care District, 400 W. Mineral King, Visalia, CA, 93291, USA.
Ysabel DuronLatino Cancer Institute, 123 East San Carlos Street, #413, San Jose, CA, 95112, USA.
Anna María NápolesNational Institute on Minority Health and Health Disparities, National Institutes of Health, 9000 Rockville Pike, Building 3, Floor 5, Room E08, Bethesda, MD, 20892, USA. anna.napoles@nih.gov.ORCID http://orcid.org/0000-0001-8838-2899
Cancer Resource Center of the Desert · USNational Institutes of Health · USKaweah Delta Health Care District · USUniversity of California, San Francisco · USCírculo de Vida · USFamily Service Agency of the Central Coast · USLatino Health Institute (United States) · USSan Francisco State University · US

Funding

RESOURCE CENTER FOR AGING RESEARCH IN DIVERSE POPULATIONP30AG015272 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Torsten Brian Neilands · 1997 to 2026
$19.5M
Translating Behavioral Interventions for Health Disparity PopulationsZIAMD000014 · NIMHD · NATIONAL INSTITUTE ON MINORITY HEALTH AND HEALTH DISPARITIES · PI CHOI, KELVIN · 2018 to 2023
$4.8M
NIA NIH HHS 1 P30 AG15272NIA NIH HHS P30 AG015272
6 · The paper itself

Abstract

backgroundAn often heard and justifiable concern of ethnic minorities is related to researchers' lack of attention to sharing the results of a study with participants after the study has concluded. Few studies have examined the effects of returning overall study results on participants' attitudes, especially among populations underrepresented in research. Among Latina research participants, providing a summary of study results could enhance participation in research. We assess Latina breast cancer survivors' reactions to receiving study results and their attitudes about participating in future studies.

methodsFor this cross-sectional survey study, all women who had participated in two behavioral randomized controlled trials (RCTs) were mailed a letter summarizing the study results (using written and graphic formats) and a questionnaire assessing problems and understanding the results, importance of sharing results, willingness to participate in future studies, and format preferences for receiving the results. A postage-paid envelope for returning the completed questionnaire was included. Logistic regression examined the associations of age, education, and rural/urban residence on format preferences and willingness to participate. The survey sample consisted of 304 low-income, predominantly Spanish-speaking Latina breast cancer survivors (151 from urban and 153 from rural communities) who had participated in two RCTs testing a stress management program designed for Latina breast cancer survivors.

resultsNinety-two women returned the questionnaires (30.3%). Most of the women (91.1%) indicated that they had no trouble understanding the results of the study, and 97% agreed that it is very/extremely important for researchers to share the study result with the participants. The majority (60.2%) reported that receiving the results increased their willingness to participate in future studies. About half (51.7%) did not have a format preference, 37.4% preferred written summaries, and 10.9% preferred graphs.

conclusionsThis study is an important first step to understanding the impact of returning study results among a population that is underrepresented in research. Returning the results of studies and understanding the impact of doing so is consistent with maintaining community involvement in all phases of research. The findings suggest that sharing aggregate research results in simple language yields few problems in participants' understanding of the results and is viewed as important by participants.

trial registrationClinicalTrials.gov NCT02931552 Date registered: October 13, 2016 and NCT01383174 Date registered: June 28, 2011.

Indexed as

Breast NeoplasmsCancer SurvivorsCross-Sectional StudiesEthnic and Racial MinoritiesFemaleHispanic or LatinoHumansSurveys and QuestionnairesCancer survivorsCommunity-based participatory researchCommunity participationHispanic AmericansInformation disseminationLanguageLiteracyMinority groupsRural populationSurveys and questionnaires

Identifiers

PMID34998436
PMCPMC8742155
OpenAlexW4206122547

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.