ArticleBMJ open2022
Informal caregiver support needs and burden: a survey in Lithuania.
Article in BMJ open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
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Who cites it
20 citing papers in PubMed, 32 citations in OpenAlex.
- Major mental disorders among family caregivers: a nation-wide register-based study.Scandinavian journal of primary health care · 2026Article
- Observational
- "Silent Echoes of the Day: Dream Content Analysis in Amyotrophic Lateral Sclerosis".Brain and behavior · 2026Article
- Mapping Existing Informal Home Caregiver Support Guidelines for Palliative Care: A Scoping Review.Rwanda journal of medicine and health sciences · 2026Review
- Unraveling the complexities: A scoping review of the collateral effects on informal caregivers during and beyond the COVID-19 pandemic.Palliative care and social practice · 2026Review
- Capturing Potential Interventions for the Empowerment of Older People and Informal Caregivers in Transitional Care Decision-Making: A Qualitative Study Using Focus Groups.Journal of advanced nursing · 2025Article
- Caregiver burden, psychological well-being, and support needs among Swedish informal caregivers.BMC public health · 2025Article
- How are location and type of caring associated with the carer's mental health? Cross-sectional and longitudinal findings from SHARE.European journal of ageing · 2025Article
- An exploratory investigation of psychosocial effects of service dogs on veterans' families from the perspective of family members.Frontiers in psychology · 2025Article
- Digital Informal Care: The Use of Technology in Family Care. A Scoping Review.Public health reviews · 2025Review
- Needs of Family Caregivers of People with Lower Limb Amputations: A Scoping Review.Behavioral sciences (Basel, Switzerland) · 2024Article
- Caregiver burden and health-related quality of life: A study of informal caregivers of older adults in Ghana.Journal of health, population, and nutrition · 2024Article
- Designing a Mobile e-Coaching App for Immigrant Informal Caregivers: Qualitative Study Using the Persuasive System Design Model.JMIR mHealth and uHealth · 2023Article
- Role and perspectives of informal care: a qualitative study of informal caregivers in the Republic of Croatia.BMJ open · 2023Article
- Positive Design Framework for Carer eSupport: Qualitative Study to Support Informal Caregivers of Patients With Head and Neck Cancer in Sweden.JMIR cancer · 2023Article
- Cognitive behavioural therapy self-help intervention preferences among informal caregivers of adults with chronic kidney disease: an online cross-sectional survey.BMC nephrology · 2023Article
- "Why take the patient back home?": Exploring the lived experiences of caregivers of COVID-19-infected individuals in Blantyre, Malawi.PLOS global public health · 2023Article
- Caregiving Situation as a Predictor of Subjective Caregiver Burden: Informal Caregivers of Older Adults during the COVID-19 Pandemic.International journal of environmental research and public health · 2022Article
- Perceptions of Stress and Engagement in High-Intensity Caregiving: A Cross-Sectional Study in Lithuania.Inquiry : a journal of medical care organization, provision and financingArticle
- Correlates of Physical and Emotional Strain Among Older Adult Caregivers.Journal of gerontological social workArticle
Corrections and comments
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Authors and funding
4 authors at 3 institutions in 4 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionA demand for informal care exists worldwide. Lithuania presents an interesting case example where the need for the informal care is increasing, but relatively little research has been conducted documenting caregivers' experiences and needs.
objectivesThe main objective of this study was to investigate Lithuanian informal caregiver characteristics, support needs and burden. In addition, the impact of the COVID-19 on the caregiver's and care receiver's well-being was investigated.
methodsThe study was conducted online between May and September 2020. Informal caregivers and individuals with informal caregiving experiences were invited to participate in the survey. The survey questionnaire comprised 38 multiple-choice items including participant demographic characteristics, availability of the support, support needs, well-being and the impact of the COVID-19 pandemic. In addition, caregiver burden was assessed with the 24-item Caregiver Burden Inventory (CBI).
resultsA total of 226 individuals completed the survey. Most of the participants were women (87.6%). Almost half of the participants (48.7%) were not receiving any support, and a total of 73.9% expressed a need to receive more professional support. Participants were found to experience high burden on the CBI (M=50.21, SD=15.63). Women were found to be significantly more burdened than men (p=0.011). Even though many participants experienced psychological problems (55.8%), only 2.2% were receiving any psychological support. Finally, majority of the participants did not experience any changes in their own (63.7%) or the well-being of their care receiver (68.1%) due to the COVID-19 pandemic.
conclusionMost of the participants were identified as intensive caregivers experiencing a high burden. A majority did not experience changes in their well-being due to COVID-19. We propose several recommendations for increasing accessibility and availability of support for informal caregivers in Lithuania based on the study findings.
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