ArticleHealth affairs (Project Hope)2022
Informal Caregivers Provide Considerable Front-Line Support In Residential Care Facilities And Nursing Homes.
Article in Health affairs (Project Hope), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 40 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
40 citing papers in PubMed, 1 synthesis or guideline pooled it, 64 citations in OpenAlex.
- Changes in Federal and State Policies on Visitation Restrictions in Nursing Homes During the COVID-19 Pandemic.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Pooled it
- Economic situation of informal caregivers for older adults in the context of changing long-term care policies: a mixed methods study.BMC public health · 2026Article
- Identifying the facilitators and barriers of a healthy transition for adult children when an older parent is transferred to a nursing home: a narrative approach.BMC primary care · 2026Article
- Building rehabilitation care capacity for older adults living in long-term care through family/care partner and physical therapist engagement: a scoping review.BMC geriatrics · 2026Article
- Mapping Caregiver Needs' Assessment Tools for Family and Friend Caregivers: A Rapid Scoping Review.International journal of environmental research and public health · 2026Article
- Article
- Understanding the Lived Experience of Family Caregivers of Loved Ones in Long-Term Care During COVID-19 Through Art.International journal of environmental research and public health · 2026Article
- Telehealth services utilization among middle-aged and older informal caregivers: evidence from national-level data in the United States.Frontiers in public health · 2026Article
- Factors that influence the burden of the caregiver of cardiovascular patients. A multicenter study.BMC public health · 2025Article
- Equipping Change Agents: Applying Mixed Methods to Learn About the Outcomes of the Co-Designed Caregiver-Centered Care Champions Education Program.International journal of environmental research and public health · 2025Article
- The Role of Emergency Medicine in the Hospital-at-Home.Annals of emergency medicine · 2025Article
- Variations in State Essential Caregiver Programs for Nursing Homes During the COVID-19 Pandemic.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
- Managed Long-Term Services and Supports and Caregiving Among Dually Enrolled Older Adults.JAMA network open · 2025Article
- Latinx Views on the Roles of Families and Government in Long-Term Care.The Gerontologist · 2025Article
- Health of the Pandemic Dementia Paid Staff and Unpaid Caregiver Workforce in Congregate Care and Community Settings.The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry · 2025Article
- Caregivers' knowledge, attitudes and behaviour towards the daily oral care of bedridden patients in Chiang Rai, Thailand.Gerodontology · 2025Article
- Transforming Care Through Co-Design: Developing Inclusive Caregiver-Centered Education in Healthcare.Healthcare (Basel, Switzerland) · 2025Article
- Changes in Long-term Services and Supports Among Adults With and Without Dementia During the First Year of the COVID-19 Pandemic.Innovation in aging · 2025Article
- Article
- Informal care provided in US nursing homes: Reduced from 2010 to 2021 and lower for Medicaid residents.Journal of the American Geriatrics Society · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 2 institutions in 1 country.
Funding
Abstract
Informal care, or care provided by family and friends, is the most common form of care received by community-dwelling older adults with functional limitations. However, less is known about informal care provision within residential care settings including residential care facilities (for example, assisted living) and nursing homes. Using data from the Health and Retirement Study (2016) and the National Health and Aging Trends Study (2015), we found that informal care was common among older adults with functional limitations, whether they lived in the community, a residential care facility, or a nursing home. The hours of informal care provided were also nontrivial across all settings. This evidence suggests that informal caregiving and some of the associated burdens do not end when a person transitions from the community to residential care or a nursing home setting. It also points to the large role that families play in the care and well-being of these residents, which is especially important considering the recent visitor bans during the COVID-19 epidemic. Family members are an invisible workforce in nursing homes and residential care facilities, providing considerable front-line work for their loved ones. Providers and policy makers could improve the lives of both the residents and their caregivers by acknowledging, incorporating, and supporting this workforce.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.