ArticleJournal of autism and developmental disorders2022
Autistic Adults' Experiences of Diagnosis Disclosure.
Article in Journal of autism and developmental disorders, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
18 citing papers in PubMed.
- "Tell Me What My Job Is": A Qualitative Exploration of the Experiences of Autistic Academic Staff Working in Higher Education in Ireland.Autism : the international journal of research and practice · 2026Article
- Quality of life outcomes associated with stigma in autistic adults and their families: a systematic review.Frontiers in psychiatry · 2026Review
- A Qualitative Study of the Diagnostic Experiences of Young Autistic Adults in China.Journal of autism and developmental disorders · 2025Article
- Understanding Autistic Identity Disclosure in Higher Education.Autism in adulthood · 2025Article
- 'Am I gonna regret this?': The experiences of diagnostic disclosure in autistic adults.Autism : the international journal of research and practice · 2025Article
- Thriving… or Just Surviving? Autistic Journeys in Higher Education.Current psychiatry reports · 2024Review
- The Lived Experience of Autistic Adults in Employment: A Systematic Search and Synthesis.Autism in adulthood · 2024Review
- An Examination of Perceived Stress and Emotion Regulation Challenges as Mediators of Associations Between Camouflaging and Internalizing Symptomatology.Autism in adulthood · 2024Article
- 'Who, When, How to Share': Pilot study of a new disclosure decision-making programme for autistic adults.Autism : the international journal of research and practice · 2024Article
- 'Most people have no idea what autism is': Unpacking autism disclosure using social media analysis.Autism : the international journal of research and practice · 2024Article
- Autistic Adults' Priorities for Future Autism Employment Research: Perspectives from the United Kingdom.Autism in adulthood · 2024Article
- "When I need help, I ask my friends": experiences of Spanish autistic women when disclosing their late diagnosis to family and friends.Frontiers in psychology · 2024Article
- Using Experience Sampling Methodology to Capture Disclosure Opportunities for Autistic Adults.Autism in adulthood · 2023Article
- Exploring Identity Importance for Autistic Adults and Associations with Disclosure Experiences: A Brief Report.Autism in adulthood · 2023Article
- Using the COM-B Model and Theoretical Domains Framework to Understand Workplace Disclosure Experiences, Influencers, and Needs Among Autistic Young Adults.Journal of autism and developmental disorders · 2023Article
- Development and Usability Testing of a Web-Based Workplace Disability Disclosure Decision Aid Tool for Autistic Youth and Young Adults: Qualitative Co-design Study.JMIR formative research · 2023Article
- "Peas in a pod": Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults.Journal of autism and developmental disorders · 2023Article
- To tell or not to tell - disclosure of autism in the workplace.International journal of developmental disabilities · 2023Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
As autism is an invisible and often stigmatised condition, disclosing the diagnosis may lead to both support and/or discrimination. This mixed-methods questionnaire study examined autistic adults' experiences of disclosure in various contexts. The sample consisted of 393 participants aged 17-83 years from two longitudinal surveys. Almost all participants disclosed their diagnosis to someone, most commonly to friends. A significant minority of participants studying and/or working at the time had not disclosed to their education provider/employer. Content analysis of open-ended responses showed participants desired to gain understanding and support from disclosure but feared prejudice. While some received support, others encountered dismissiveness and misunderstanding. Findings highlight the need to improve autism understanding and reduce stigma within and beyond educational and employment contexts.
Indexed as
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.