Evidence map›Paper›PMID 34967680›Full record

ArticleJournal of child health care : for professionals working with children in the hospital and community2023

Crossroads of parental decision making: Intersections of hope, communication, relationships, and emotions.

Amie Koch, Tara Albrecht, Arthi S Kozhumam, Heeyeon Son, Debra Brandon, Sharron L Docherty

Open access · greenAbstract read
In one paragraph

Article in Journal of child health care : for professionals working with children in the hospital and community, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed, 1 pooled it
1.3field-weighted citation impact, top 21% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 1 synthesis or guideline pooled it, 12 citations in OpenAlex.

  1. Pooled it
  2. Hope in Pediatric Palliative Care: A Systematic Review.Children (Basel, Switzerland) · 2026
    Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 2 institutions in 1 country.

Amie KochDuke University School of Nursing, Lincoln Community Health Clinic, Transitions LifeCare Hospice and Palliative Care, Durham, NC, USA.ORCID 0000-0001-7889-2342
Tara AlbrechtDuke University School of Nursing, Durham, NC, USA.
Arthi S KozhumamDuke Global Health Institute, Durham, NC, USA.
Heeyeon SonDuke University School of Nursing, Durham, NC, USA.
Debra BrandonDuke University School of Nursing, Durham, NC, USA.
Sharron L DochertyDuke University School of Nursing, Durham, NC, USA.
Duke University · USDuke Institute for Health Innovation · US

Funding

Decision-making for Infants with Complex Life-Threatening ConditionsR01NR010548 · NINR · DUKE UNIVERSITY · PI DOCHERTY, SHARRON L · 2008 to 2012
$2.0M
NINR NIH HHS R01 NR010548
6 · The paper itself

Abstract

Parents of children born with complex life-threatening chronic conditions (CLTCs) experience an uncertain trajectory that requires critical decision making. Along this trajectory, hope plays an influential but largely unexplored role; therefore, this qualitative descriptive study explores how parent and provider hope may influence decision making and care of a child born with CLTCs. A total of 193 interviews from 46 individuals (parents, nurses, physicians, and nurse practitioners) responsible for the care of 11 infants with complex congenital heart disease (CCHD) were analyzed to understand how hope features in experiences related to communication, relationships, and emotions that influence decision making. Overall, parental hope remained strong and played a pivotal role in parental decision making. Parents and professional healthcare providers expressed a range of emotions that appeared to be integrally linked to hope and affected decision making. Providers and parents brought their own judgments, perceptions, and measure of hope to relationships, when there was common ground for expressing, and having, hope, shared decision making was more productive and they developed more effective relationships and communication. Relationships between parents and providers were particularly influenced by and contributory to hope. Communication between parents and providers was also responsible for and responsive to hope.

Indexed as

Decision MakingParentsCommunicationEmotionsHumansInfantQualitative ResearchUncertaintyCommunicationdecision makinghopeintensive care unitsparentspediatric

Identifiers

PMID34967680
PMCPMC10155486
OpenAlexW4200014218

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.