Evidence map›Paper›PMID 34966756›Full record

ArticleFrontiers in medicine2021

Empowering Patients in the Therapeutic Decision-Making Process: A Glance Into Behçet's Syndrome.

Diana Marinello, Federica Di Cianni, Alessandra Del Bianco, Irene Mattioli, Jurgen Sota, Luca Cantarini, Giacomo Emmi, Pietro Leccese, Giuseppe Lopalco, Marta Mosca and 5 more

Abstract read
In one paragraph

Article in Frontiers in medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
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  5. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Diana MarinelloRheumatology Unit, Azienda Ospedaliero Universitaria Pisana, University of Pisa, Pisa, Italy.
Federica Di CianniRheumatology Unit, Azienda Ospedaliero Universitaria Pisana, University of Pisa, Pisa, Italy.
Alessandra Del BiancoAssociazione Italiana Sindrome e Malattia di Behçet, Pontedera, Italy.
Irene MattioliDepartment of Experimental and Clinical Medicine, University of Firenze, Firenze, Italy.
Jurgen SotaRheumatology Unit, Department of Medicine, Surgery, and Neurosciences, University of Siena, Siena, Italy.
Luca CantariniRheumatology Unit, Department of Medicine, Surgery, and Neurosciences, University of Siena, Siena, Italy.
Giacomo EmmiDepartment of Experimental and Clinical Medicine, University of Firenze, Firenze, Italy.
Pietro LecceseRheumatology Department of Lucania, Rheumatology Institute of Lucania, San Carlo Hospital of Potenza and Madonna delle Grazie Hospital of Matera, Potenza and Matera, Italy.
Giuseppe LopalcoRheumatology Unit, Department of Emergence Medicine and Transplantation (DETO), University of Bari Aldo Moro, Bari, Italy.
Marta MoscaRheumatology Unit, Azienda Ospedaliero Universitaria Pisana, University of Pisa, Pisa, Italy.
Angela PadulaRheumatology Department of Lucania, Rheumatology Institute of Lucania, San Carlo Hospital of Potenza and Madonna delle Grazie Hospital of Matera, Potenza and Matera, Italy.
Matteo PigaRheumatology Unit, Department of Medical Sciences and Public Health, AOU University Clinic and University of Cagliari, Cagliari, Italy.
Carlo SalvaraniRheumatology Unit, Azienda USL-IRCCS di Reggio Emilia and Università di Modena e Reggio Emilia, Modena, Italy.
Domenica TaruscioNational Centre for Rare Diseases, Istituto Superiore di Sanità, Rome, Italy.
Rosaria TalaricoRheumatology Unit, Azienda Ospedaliero Universitaria Pisana, University of Pisa, Pisa, Italy.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Behçet's syndrome (BS) represents a challenging condition, characterized by a variable spectrum of disease profile and associated with a significant limitation of the daily activities as well as a potential negative impact on relationships and psychological status. Considering also the complexity of the therapeutic management of BS, that often includes biological off-label treatments, the participation in the therapeutic decision-making process of the BS patients is essential to ensure the integration of the care process into the life of the patient. For this reason, the empowerment of BS patients represents a crucial need and the present work is aimed at fully exploring all the potential variables implicated in the BS patient empowerment, also highlighting major points to consider and concrete actions to be planned in the immediate future in order to implement a pragmatic facilitation of the patients' empowerment.

Indexed as

Behçet diseasedecision making process (DMP)patient educationpatient empowermentrare disease (RD)

Identifiers

PMID34966756
PMCPMC8710680

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.