ArticlePalliative medicine2022
Patient perspectives on states worse than death: A qualitative study with implications for patient-centered outcomes and values elicitation.
Article in Palliative medicine, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
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Who cites it
16 citing papers in PubMed.
- Effects of an early restrictive versus liberal fluid strategy on long-term patient-centered outcomes in sepsis-induced hypotension: an open-label, randomized controlled trial.American journal of respiratory and critical care medicine · 2026Trial
- Person-Centered Care at the End of Life: Challenging Ableism in Conversations About What Matters Most.Journal of general internal medicine · 2026Review
- Expectations before periacetabular osteotomy and relation to post-operative outcomes and satisfaction.Journal of hip preservation surgery · 2026Article
- Dyadic-concordance death-preparedness states and end-of-life care received by cancer patients.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Permanent cognitive or physical impairment after transfer from long-term care to acute care: a retrospective cohort study.Age and ageing · 2026Article
- Is it worse than death? Appraisal of health states among older adults and their relatives in Switzerland.Health and quality of life outcomes · 2025Article
- Article
- 'Beyond the Reach of Palliative Care': A Qualitative Study of Patient and Public Experiences and Anticipation of Death and Dying.Qualitative health research · 2024Article
- Hospital-free days: A novel measure to study outcomes for emergency department care.Academic emergency medicine : official journal of the Society for Academic Emergency Medicine · 2024Article
- Measuring Quality-weighted Hospital-Free Days in Acute Respiratory Failure: A Modified Delphi Study.Annals of the American Thoracic Society · 2024Article
- Sepsis-associated acute kidney injury: recent advances in enrichment strategies, sub-phenotyping and clinical trials.Critical care (London, England) · 2024Review
- Patients' experiences and perspectives of post-hospital follow-up care to improve physical recovery for intensive care survivors: A systematic review of qualitative research.International journal of nursing studies advances · 2023Review
- Emergency Surgery, Multimorbidity and Hospital-Free Days: A Retrospective Observational Study.The Journal of surgical research · 2023Observational
- In-hospital outcomes among older medical inpatients admitted to aged care wards after activation of a 2-tier rapid response system.BMC geriatrics · 2023Article
- Days Spent at Home and Mortality After Critical Illness: A Cluster Analysis Using Nationwide Data.Chest · 2023Article
- "It's that invisible illness": Patient and clinician perspectives on outcomes in pulmonary arterial hypertension treatment.Pulmonary circulation · 2023Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
backgroundSeriously ill patients rate several health outcomes as states worse than death. It is unclear what factors underlie such valuations, and whether consideration of such states is useful when making medical decisions.
aimWe sought to (1) use qualitative approaches to identify states worse than death, (2) identify attributes common to such undesirable health states, and (3) determine how participants might use information on these states in making medical decisions.
designQualitative study of semi-structured interviews utilizing content analysis with constant comparison techniques. SETTING,
participantsWe interviewed adults age 65 or older with serious illnesses after discharge home from one of two urban, academic hospitals. Eligible patients were purposively sampled to achieve balance in gender and race.
resultsOf 29 participants, 15 (52%) were female, and 15 were white (52%), with a median age of 72 (interquartile range 69, 75). Various physical, cognitive, and social impairments were identified as states worse than death. The most commonly reported attributes underlying states worse than death were perceived burden on loved ones and inability to maintain human connection. Patients believed information on states worse than death must be individualized, and were concerned their opinions could change with time and fluctuations in health status.
conclusionsCommon factors underlying undesirable states suggest that for care to be patient-centered it must also be family-centered. Patients' views on using states worse than death in decision making highlight barriers to using avoidance of such states as a quality measure, but also suggest opportunities for eliciting patients' values.
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