ArticleHealth (London, England : 1997)2023
A solidarity paradox - welfare state data in global health data economy.
Article in Health (London, England : 1997), 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed.
- The 'Ghost in the Shell' of NHS Patient Data Policies: News Media on care.data's Haunting of the General Practice Data for Planning and Research.Sociology of health & illness · 2026Article
- Understandings and practices of solidarity in global health: a scoping review of the literature.Globalization and health · 2026Article
- Health data sovereignty: pinpointing conceptual ambiguities.Frontiers in digital health · 2026Article
- A scoping review of ethical aspects of public-private partnerships in digital health.NPJ digital medicine · 2025Article
- How the world of biobanking is changing with artificial intelligence.Frontiers in digital health · 2025Review
- Population curation: The construction of mutual obligation between individual and state in Danish precision medicine.Social studies of science · 2024Article
- Invisible: People with Disability and (In)equity in Precision Medicine Research.The American journal of bioethics : AJOB · 2024Article
- Acceptability of prepayment, social solidarity and cross-subsidies in national health insurance: A mixed methods study in Western Kenya.Frontiers in public health · 2022Article
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Nordic welfare states have well institutionalised practises of gathering health and social wellbeing data from their citizens. The establishment of population registers coincided with the building of welfare state institutions and a social contract relying on solidarity. During the last decade, the significance of Nordic registers and health data has increased and they have become sources of economic value. Recent policies expect registers, health data and biobanks to attract international investments, making Nordic countries world-leaders in the global health data economy. In this article we question the conditions and boundaries of solidarity in the emerging data-driven health economy. We argue that the logics of welfare state and data-driven health economy create a paradox - the data economy is not possible without the welfare state data regime, but the logic of data-driven health economy contradicts the value bases of the welfare state data regime and therefore the justifications for data gathering and use become questionable. We develop the concept of
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.