Evidence map›Paper›PMID 34960242›Full record

ArticleVaccines2021

COVID-19 Vaccinations: Perceptions and Behaviours in People with Primary Ciliary Dyskinesia.

Eva S L Pedersen, Maria Christina Mallet, Yin Ting Lam, Sara Bellu, Isabelle Cizeau, Fiona Copeland, Trini Lopez Fernandez, Michele Manion, Amanda L Harris, Jane S Lucas and 4 more

Open access · goldAbstract read
In one paragraph

Article in Vaccines, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
0.6field-weighted citation impact, top 26% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it, 6 citations in OpenAlex.

  1. Pooled it
  2. Pulmonary exacerbations in primary ciliary dyskinesia.European journal of pediatrics · 2026
    Review
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 4 institutions in 4 countries.

Eva S L PedersenInstitute of Social and Preventive Medicine, University of Bern, 3012 Bern, Switzerland.ORCID 0000-0003-0293-9954
Maria Christina MalletInstitute of Social and Preventive Medicine, University of Bern, 3012 Bern, Switzerland.ORCID 0000-0002-3633-8017
Yin Ting LamInstitute of Social and Preventive Medicine, University of Bern, 3012 Bern, Switzerland.ORCID 0000-0002-2380-834X
Sara BelluAssociazione Italiana Discinesia Ciliare Primaria Sindrome di Kartagener Onlus, 70124 Bari, Italy.
Isabelle CizeauAssociation ADCP, 42218 Saint-Étienne, France.
Fiona CopelandPCD Support UK, London MK18 9DX, UK.
Trini Lopez FernandezAsociación Española de Pacientes con Discinesia Ciliar Primaria, Santo Ángel 30151, Philippines.
Michele ManionPCD Foundation, Minneapolis, MN 55420, USA.
Amanda L HarrisPrimary Ciliary Dyskinesia Centre, NIHR Biomedical Research Centre, University Hospital Southampton NHS Foundation Trust, Southampton SO16 6YD, UK.ORCID 0000-0002-6953-7370
Jane S LucasPrimary Ciliary Dyskinesia Centre, NIHR Biomedical Research Centre, University Hospital Southampton NHS Foundation Trust, Southampton SO16 6YD, UK.ORCID 0000-0001-8701-9975
Francesca SantamariaDepartment of Translational Medical Sciences, Federico II University, 80138 Naples, Italy.ORCID 0000-0002-9375-7429
Myrofora GoutakiInstitute of Social and Preventive Medicine, University of Bern, 3012 Bern, Switzerland.ORCID 0000-0001-8036-2092
Claudia E KuehniInstitute of Social and Preventive Medicine, University of Bern, 3012 Bern, Switzerland.ORCID 0000-0001-8957-2002
Covid-Pcd Patient Advisory Group
University of Bern · CHUniversity Hospital Southampton NHS Foundation Trust · GBADIR Association · FRFederico II University Hospital · IT

Funding

Swiss Lung Association 2021-08_PedersenSwiss National Science Foundation 320030B_192804/1Swiss National Science Foundation PZ00P3_185923
6 · The paper itself

Abstract

Primary ciliary dyskinesia (PCD) is a rare genetic disease that causes recurrent respiratory infections. People with PCD may be at higher risk of severe coronavirus disease 2019 (COVID-19), and therefore vaccination against severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) is important. We studied vaccination willingness, speed of vaccination uptake, side effects, and changes in social contact behaviour after vaccination in people with PCD. We used data from COVID-PCD, an international participatory cohort study. A COVID-19 vaccination questionnaire was emailed to participants in May 2021 and 423 participants from 31 countries replied (median age: 30 years, range 1-85 years; 261 (62%) female). Vaccination uptake and willingness were high, with 273 of 287 adults (96%) being vaccinated or willing to be in June 2021; only 4% were hesitant. The most common reason for hesitancy was fear of side effects, reported by 88%. Mild side effects were common, but no participant reported severe side effects. Half of the participants changed their social behaviour after vaccination by seeing friends and family more often. The high vaccination willingness in the study population might reflect the extraordinary effort taken by PCD support groups to inform people about COVID-19 vaccination. Clear and specific information and involvement of representatives is important for high vaccine uptake.

Indexed as

COVID-19pandemicPCDprimary ciliary dyskinesiaSARS-CoV-2vaccinationsvaccine

Identifiers

PMID34960242
PMCPMC8707304
OpenAlexW4225757866

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.