ArticleJournal of the American Medical Directors Association2022
Evidence for Action: Addressing Systemic Racism Across Long-Term Services and Supports.
Article in Journal of the American Medical Directors Association, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers.
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Who cites it
30 citing papers in PubMed.
- Alzheimer's disease and related dementias state policies and mortality in the United States: A descriptive study.Journal of Alzheimer's disease : JAD · 2026Article
- Medicaid home and community based services are vital for adults with intellectual and developmental disabilities: A descriptive study of service use among all adult enrollees, 2022.Disability and health journal · 2026Article
- Factors Associated with Perceived Discrimination in Healthcare Among United States Middle-aged and Older Adults.Journal of general internal medicine · 2026Article
- Improving information sharing in Medicaid home and community-based services with learning health systems: Implications for older adults and individuals living with disabilities and dementia.Learning health systems · 2025Article
- Hospital and Skilled Nursing Facility Networks: Informal Relationships and Their Role in the Placement of Traditional Medicare Beneficiaries With Serious Mental Illness.Health services research · 2025Article
- Measuring Consumer-Reported Quality of Life Among Recipients of Publicly Funded Home- and Community-Based Services: Implications for Health Equity.Journal of aging and health · 2025Article
- Medicaid Payments and Racial and Ethnic Disparities in Alzheimer Disease Special Care Units.JAMA network open · 2025Article
- Service Utilization and Consumer-Reported Unmet Needs in Medicaid Home- and Community-Based Services for Older Adults.Journal of aging & social policy · 2025Article
- Understanding and Addressing Mental Health Disparities and Stigma in Serious Illness and Palliative Care.Illness, crises, and loss · 2025Article
- How Neighborhood Social Deprivation Is Associated With Nursing Home Quality: A Structure, Process, Outcome Model.Innovation in aging · 2025Article
- Family Involvement in the Care of Nursing Home Residents With Dementia: A Scoping Review.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2024Article
- Utilization and Potential Disparities in Access to Physical Therapy for Spine Pain in the Long-Term Care Population.Archives of physical medicine and rehabilitation · 2024Article
- Instruments for racial health equity: a scoping review of structural racism measurement, 2019-2021.Epidemiologic reviews · 2024Article
- Article
- Post-acute care transitions during COVID-19: Racial, ethnic, and socioeconomic differences in older adults with Alzheimer's disease and related dementia.Journal of the American Geriatrics Society · 2024Article
- Racial Differences in Nursing Home Quality of Life Among Residents Living With Alzheimer's Disease and Related Dementias.Journal of aging and health · 2024Article
- A National Typology of Health Service Regulation in Assisted Living.The Gerontologist · 2024Article
- Exploring Overt Racial and Ethnic Conflict in Resident-to-Resident Aggression in Long-Term Care Facilities.Journal of the American Medical Directors Association · 2024Article
- Leveraging Health Services Research to Address Aging Health Equity.Generations (San Francisco, Calif.) · 2024Article
- Linking Medicare-Medicaid Claims for Patient-Centered Outcomes Research Among Dual-Eligible Beneficiaries.Medical care · 2023Article
Corrections and comments
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Authors and funding
10 authors.
Funding
Abstract
Long-term services and supports (LTSS), including care received at home and in residential settings such as nursing homes, are highly racially segregated; Black, Indigenous, and persons of color (BIPOC) users have less access to quality care and report poorer quality of life compared to their White counterparts. Systemic racism lies at the root of these disparities, manifesting via racially segregated care, low Medicaid reimbursement, and lack of livable wages for staff, along with other policies and processes that exacerbate disparities. We reviewed Medicaid reimbursement, pay-for-performance, public reporting of quality of care, and culture change in nursing homes and integrated home- and community-based service (HCBS) programs as possible mechanisms for addressing racial and ethnic disparities. We developed a set of recommendations for LTSS based on existing evidence, including (1) increase Medicaid and Medicare reimbursement rates, especially for providers serving high proportions of Medicaid-eligible and BIPOC older adults; (2) reconsider the design of pay-for-performance programs as they relate to providers who serve underserved groups; (3) include culturally sensitive measures, such as quality of life, in public reporting of quality of care, and develop and report health equity measures in outcomes of care for BIPOC individuals; (4) implement culture change so services are more person-centered and homelike, alongside improvements in staff wages and benefits in high-proportion BIPOC nursing homes; (5) expand access to Medicaid-waivered HCBS services; (6) adopt culturally appropriate HCBS practices, with special attention to family caregivers; (7) and increase promotion of integrated HCBS programs that can be targeted to BIPOC consumers, and implement models that value community health workers. Multipronged solutions may help diminish the role of systemic racism in existing racial disparities in LTSS, and these recommendations provide steps for action that are needed to reimagine how long-term care is delivered, especially for BIPOC populations.
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