ArticleHealth services research2022
Provider perspectives on integrating family caregivers into patient care encounters.
Article in Health services research, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Experience of patients considering or using checkpoint inhibitors in cancer treatment: a systematic review of qualitative research.Journal for immunotherapy of cancer · 2024Pooled it
- A Pilot Trial Evaluating Collaborative Healthcare Encounters With Caregivers: A Checklist-Based Intervention for Primary Care.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Trial
- Caregiver Communication and Preparedness During Transitions in Care: Results from a Randomized Controlled Trial.Journal of palliative medicine · 2025Trial
- Perceptions on design, operability and impact of a power-assist, novel caregiver assist transport chair: a mixed methods study.Disability and rehabilitation. Assistive technology · 2026Article
- Caregiving across distances: residential proximity, care activities, and mental health.The Gerontologist · 2026Article
- Developing and Evaluating an Inpatient Caregiver Support Program: Feasibility, Acceptability, and Perceived Impact.Mayo Clinic proceedings. Innovations, quality & outcomes · 2026Article
- Health Care Providers' Perceptions of Unmet Needs Among African American Cancer Caregivers: Qualitative Investigation Among US Medical Professionals.JMIR cancer · 2026Article
- Qualitative exploration of how clinicians navigate divergence in older adult and family caregiver priorities.BMC geriatrics · 2025Article
- Equipping Change Agents: Applying Mixed Methods to Learn About the Outcomes of the Co-Designed Caregiver-Centered Care Champions Education Program.International journal of environmental research and public health · 2025Article
- Bridging the Care Gap: Integrating Family Caregiver Partnerships into Healthcare Provider Education.Healthcare (Basel, Switzerland) · 2025Article
- Support for Care Partners and Caregivers: 2023 Summit Session 5.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- A look at caregivers for community-living persons with dementia: Implications for the GUIDE model.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Care Partner Perspectives on the Use of a Patient Portal Intervention to Promote Care Partner Identification in Dementia Care.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
- Persons living with dementia and caregivers' communication preferences for receiving a dementia diagnosis.PEC innovation · 2024Article
- "I'm not the one with cancer but it's affecting me just as much": A qualitative study of rural caregivers' experiences seeking and accessing support for their health and wellbeing while caring for someone with cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Integrating family caregivers in older adults' hospital stays: a needed cultural shift.Hospital practice (1995) · 2024Article
- Family physicians' preferences for education to support family caregivers: a sequential mixed methods study.BMC primary care · 2024Article
- Potential Implementers' Perspectives on the Development and Implementation of an e-Mental Health Intervention for Caregivers of Adults With Chronic Kidney Disease: Qualitative Interview Study.JMIR human factors · 2023Article
- Empathic communication between clinicians, patients, and care partners in palliative care encounters.Patient education and counseling · 2023Article
- Provider perspectives on integrating family caregivers into patient care encounters.Health services research · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
objectiveTo examine and compare health care provider perceptions for integrating family caregivers into patient encounters and other processes of care by medical specialty. DATA SOURCES/
settingData were from 19 interviews conducted in 2018, 10 with primary care or palliative care providers and nine with proceduralists or interventionists in practices located in Minnesota, Florida, and Arizona. STUDY
designThis was a qualitative study using data collected from one-on-one, semi-structured interviews with physicians. DATA COLLECTION: By using purposeful "maximum variation" sampling to capture differences between primary and palliative care providers and proceduralists/interventionists, data were collected, reviewed, coded, and then analyzed using inductive content analysis with a constant comparison approach. PRIMARY
findingsPrimary care providers described a lack of organizational and institutional resources to support caregivers. Accordingly, they were compelled to curb caregiver engagement in order to meet patients' clinical care needs within the time and workflow demands in encounters. Proceduralists and interventionists described the need to assess caregivers for suitability to provide care during intense periods of treatment. They reported having access to more formal organizational resources for supporting caregivers. Overall, providers described a paradox, where caregivers are seen as contributing value to patient encounters until they need training, education, or support to provide care, at which point they become burdensome and require more time and resources than are typically available.
conclusionsResults highlight how organizational constraints inhibit caregiver engagement in patient encounters and influence provider attitudes about engaging caregivers and assessing their unmet needs. Findings also provide insights into challenges across practice types for implementing state and federal laws that promote caregiver engagement.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.